September 6, 2016 at 4:12 pm #137398Support in Education: live Q&A on Mon 19 September
As we enter into another academic year, it is essential to make sure children with muscle-wasting conditions have the right support at school to guarantee equal access to a fulfilling education.
Muscular Dystrophy UK are hosting a discussion on TalkMD about the correct support for children with complex neuromuscular conditions. We will be joined by neuromuscular care advisor for the East of England, Andrea Russell, who will be helping us answer your questions about support in school.
Join us on the 19th September at 1:30- 3:00pm when Andrea will be on the forum live to answer questions, or feel free to leave any comments or questions now which can be answered as the discussion begins. For any urgent queries please call our helpline on 0800 652 6352.
Please visit here to sign up to the forum: http://www.musculardystrophyuk.org/register/JoelRParticipantPosts: 0Joined: 01/12/2015September 19, 2016 at 12:36 pm #138006Reply To: Support in Education: live Q&A on Mon 19 September
I’m Shivani, Senior Campaigns, Advocacy and Information Officer at Muscular Dystrophy UK. I’m here to help answer any questions you might have about support at school.
We have also launched a new comprehensive education guidelines recently that we hope will be useful for all children and young people affected by muscle-wasting conditions. To find out more and download or order the guide, please see here.
Muscular Dystrophy UK staff memberAlexa FollenModeratorPosts: 32Joined: 12/05/2015September 19, 2016 at 12:51 pm #138009Reply To: Support in Education: live Q&A on Mon 19 September
Hi I’m Vivek. I’m 26 years old, so have been through the education system a long time ago. The MDUK education guidelines would have been ideal. The support is the important part, to not feeling alone or isolated in a classroom where you feel different already. Although you have a disability With support it can make your journey more inclusive, especially socially with friends.UncannyVivekParticipantPosts: 0Joined: 01/02/2015September 19, 2016 at 12:52 pm #138010Reply To: Support in Education: live Q&A on Mon 19 September
I’m Lauren, and I’m a Campaigns Officer for Trailblazers (MDUK’s young campaigners network).
I can help advise on going to college and university. So please feel free to ask me any questions you have.Lauren WestParticipantPosts: 0Joined: 11/12/2015September 19, 2016 at 1:42 pm #138014Reply To: Support in Education: live Q&A on Mon 19 September
I’m Manjula and my son Vivek has duchenne muscular dystrophy age 26. I’ve supported him through his education up to university but he did not complete his degree and due to illness had to leave and was too weak to carry on.
Issues with care at university was a major problem which caused stress and health problems.
If anyone needs to talk to me about being a parent and dealing with similar issues then feel free to ask any questions.ManjulaParticipantPosts: 0Joined: 19/09/2016September 20, 2016 at 7:28 am #138075Reply To: Support in Education: live Q&A on Mon 19 September
Hello I am Andrea a Neuromuscular care Advisor and Physiotherapist with a background in education.
I was pleased to assist with the new Education Guide and would be very happy to answer questions about ensuring best possible support for students and families, and to give guidance to education staff working with pupils who have neuromuscular conditions. We hope the new guide will be an invaluable resource.AndreaParticipantPosts: 0Joined: 20/09/2016
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