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  • #160306
    University

    Hi my son suffers from Duchenne Muscular Dystrophy and is hoping to go to University in September 2018. Could anyone share their experiences of going to University and living in halls and what kind of support you receive/needed. A whole new territory for us! Mary Smith, Newcastle upon Tynehttps://www.musculardystrophyuk.org/wp-content/themes/md-uk/monalisa-icons/imnewhere.gif

    maryh3568
    Participant
    Posts: 0
    Joined: 08/08/2018
    #160425
    Reply To: University

    Hi Mary

    Your post took me right back to how I was feeling the Summer before I went to University. I went 1996 to 1999 so I imagine support and access for disabled students has come much further since then but even then, it was pretty good.

    I lived on campus on the ground floor of a house. My room was specifically for disabled students, bit bigger than the other rooms in the flat and I had an adapted wet room ensuite.

    It was both exciting and nerve racking as I had never lived away from home before. My biggest worry was the care aspects and at this time it was the norm to have care provided by volunteers (CSVs) – many of whom were on gap years or from overseas and wanting to improve their English. There were inevitable hiccups but the Disabled Student Support were on hand to help.

    What is your son going to study? Are any care arrangements all in place? Lecturers and tutors were very helpful in my experience and I was granted extra time for assignments when I struggled with energy. Also, I had special arrangements for exams. It really was a revelation when I had been there a few weeks and thought “I’m going to be ok here!”.

    Feel free to ask any questions… hopefully some younger ex-students will contribute too. Gosh I feel old!!

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #160587
    Reply To: University

    Thanks for your reply. The university have been great and have arranged academic support for James and he will have a adapted residence in halls, which they are adapting for his needs. They have also arranged for him to have a laptop and software to help him with his studies.

    Our problem is the local authority who do not want to provide him with 24 hour care. I just wondered how others got on. Amazing to think you attend Uni with only volunteers for your care!

    James is studing Law and found out yesterday that he has been accepted!

    maryh3568
    Participant
    Posts: 0
    Joined: 08/08/2018
    #160588
    Reply To: University

    Congrats to James on his acceptance to his courses.

    How many hours does he get just now.

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #160922
    Reply To: University

    James gets 8 hours a day support at the moment. He will need 24 when he goes off to Uni.

    maryh3568
    Participant
    Posts: 0
    Joined: 08/08/2018
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