AlexandraC

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  • #77994
    Re: Disabled woman says mobility cash cuts must be reversed

    Great suggestions Mistynow, and I’ll start that now – have a look at our latest blog and news story on the DLA Mobility Component issue, setting out our concerns about the impact on disabled children in residential care.

    AlexandraC
    Participant
    Posts: 8
    Joined: 08/11/2010
    #78083
    Re: DLA claimants to miss out in benefit shake-up

    Hi all,

    Good to read all your thoughts on this key issue. You can see the Muscular Dystrophy Campaign statement here and our blog posts here and here.

    You’ll see that we’ve highlighted our concerns about the assessment procedure, and the announcement that some people will be worse off under the new system. We’ll be responding to the consultation to highlight that people living with muscle disease rely on DLA to help meet the extra costs of disability they face every day. We will oppose any cuts in eligibility for DLA which will leave people with muscle disease worse off

    We’re also looking for more details about the changes to the way the use of mobility aids is considered for the assessment, and the new possible ‘signposting’ requirements for the benefit.

    We’re keen to include as many of your views as possible in our consultation response, so please get in touch with your comments: share them here, send me a private message or email campaigns@muscular-dystrophy.org

    Or respond to the government’s consultation directly – by emailing consultation.dlareform@dwp.gsi.gov.uk or by post – DLA Reform Team, 1st Floor, Caxton House, Tothill Street, London, SW1H 9NA. The consultation is open until 14th February 2011.

    AlexandraC
    Participant
    Posts: 8
    Joined: 08/11/2010
    #77992
    Re: Disabled woman says mobility cash cuts must be reversed

    Hi Mistynow,

    Thanks for your comment – we’ve been lobbying Ministers about the DLA Mobility Component proposal – and will continue to do so. We strongly oppose the decision: as our Trailblazers Project Manger Bobby Ancil stated at the time, it suggests that “by doing this the government has made the assumption that disabled people in residential care don’t want to go to the shops, visit friends or family and or just leave place that they live. Either this or life as a disabled person has just got cheaper”.

    You’ll see on our website and on our blog how we responded to the announcement on the day of the Comprehensive Spending Review in October to the announcement on DLA Mobility, and where we covered the Westminster Hall debate earlier this week.

    It really helps if we can show the impact on people living with muscle disease who will be affected by the decision – perhaps if you send me a private message, we can talk about how we can fight to get our voices heard and this decision reversed.

    Hope to hear from you.

    AlexandraC
    Participant
    Posts: 8
    Joined: 08/11/2010
    #77308
    Re: Battling higher bills? Tell us your story….

    Thanks everyone for all your comments, and your info about higher bills.

    Today we’ve put this information together in a new hard-hitting report The Cost of Living with Muscle Disease which particularly highlights the need for people with neuromuscular conditions to receive extra support to help with higher energy bills – in particular we’ve made two key recommendations which we hope the government will implement:

    Recommendation 11: Eligibility for the Winter Fuel Allowance should be extended for people on DLA higher rate for care or mobility.

    Recommendation 12: Energy companies should increase their provision of social tariffs for people on low incomes and who incur higher electricity and heating bills because of their disability. These tariffs should be promoted and publicised to ensure that people with severe disabilities are taking up the available support.

    You can read more about our findings and recommendations here, download the full report here, or have a look at the BBC’s view here

    AlexandraC
    Participant
    Posts: 8
    Joined: 08/11/2010
    #77297
    Re: Battling higher bills? Tell us your story….

    Many thanks for all the comments – it’s great to get your views.

    AMGmod: We’re building on a survey carried out earlier this year, just to get a few more details about the number of people with neuromuscular conditions, who are under 60, receive DLA but are not eligible for the Winter Fuel Allowance, and what kind of bills they face. Your point about the different circumstances regarding family size, oil/gas, type of house is really valid – and, as well, what is affordable for some people might not be for others. That’s why we think there should be greater support for anyone with a severely disabling neuromuscular condition, in the same way that anyone over 60 receives the Winter Fuel Allowance.

    Woogy: We’ve certainly heard from quite a few people the same story: that extra layers are too heavy to wear, and can further restrict mobility. This again highlights the need for greater support with heating bills.

    Ranald: What’s really interesting about the Cold Weather Payments is that the government already recognises that people with a disability and low income (on income-related ESA, and income support) need extra support to stay warm, along with pensioners, in times of severely cold weather. Why, then, should only pensioners receive the Winter Fuel Allowance, which has the same aim?

    Taungfox: Really interesting to hear using Halogen Heaters!

    Vicki: Good advice on the reading of meters!

    AlexandraC
    Participant
    Posts: 8
    Joined: 08/11/2010
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