AmbassadorJenNE

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Viewing 3 posts - 1 through 3 (of 3 total)
  • #95337
    Re: Eventually diagnosed

    Hi Emily.
    I am glad you have made contact. It is scary and confusing when given information that effects the rest of your life, but you have come to the right place to get advice and support.
    The Muscular Dystrophy team are brilliant in helping people.
    There are local ambassadors to different regions of the country who can offer advice and listen to you.
    Trailblazers campaign on a variety of topics that people with MD and other disabilities can input on to give their opinions and make a difference to the lives of people around them.
    There are care advisors and regional groups you can attend as well for more info and to speak with pro’s who have been through what you are now.

    If you would like to know more contact the Ambassador service

    Jen Northeast Ambassador

    AmbassadorJenNE
    Participant
    Posts: 3
    Joined: 11/02/2015
    #95249
    Re: Hi I’m new here

    :new: too! :waving:

    Im the ambassador for northeast – im from Middlesbrough. the one being cared for but got lots of advice to give if any1 wants it

    AmbassadorJenNE
    Participant
    Posts: 3
    Joined: 11/02/2015
    #94501
    Re: Hello from your Advocacy Ambassadors

    Hi my name is Jen. I am 32 from Middlesbrough and I am the regional ambassador for Trailblazers for the Northeast region.

    I was diagnosed at 2yrs with Spinal Muscular Atrophy (SMA) type2

    I have come on here to give advice to anyone that requires support …. I will try my very best to get the correct info to you asap

    Feel free to contact me here or by the ambassador email if it is a more private matter.
    ambassadors@muscular-dystrophy.org

    Chat soon :waving:

    AmbassadorJenNE
    Participant
    Posts: 3
    Joined: 11/02/2015
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