Forum Replies Created
February 15, 2015 at 3:51 pm #95337Re: Eventually diagnosed
I am glad you have made contact. It is scary and confusing when given information that effects the rest of your life, but you have come to the right place to get advice and support.
The Muscular Dystrophy team are brilliant in helping people.
There are local ambassadors to different regions of the country who can offer advice and listen to you.
Trailblazers campaign on a variety of topics that people with MD and other disabilities can input on to give their opinions and make a difference to the lives of people around them.
There are care advisors and regional groups you can attend as well for more info and to speak with pro’s who have been through what you are now.
If you would like to know more contact the Ambassador service
Jen Northeast AmbassadorFebruary 11, 2015 at 2:17 pm #94501Re: Hello from your Advocacy Ambassadors
Hi my name is Jen. I am 32 from Middlesbrough and I am the regional ambassador for Trailblazers for the Northeast region.
I was diagnosed at 2yrs with Spinal Muscular Atrophy (SMA) type2
I have come on here to give advice to anyone that requires support …. I will try my very best to get the correct info to you asap
Feel free to contact me here or by the ambassador email if it is a more private matter.