Chagrin

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Viewing 20 posts - 1 through 20 (of 82 total)
  • #119528
    Reply To: Mechanical Exoskeletons

    For 500 Euro you can now try out a HAL suit for an hour in Germany:
    http://www.accessible-japan.com/walk-assist-robotics-get-approved-in-japan/

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #87117
    Re: sativex

    CBD is now mainstream, you can actually buy the extract on amazon.
    It is pretty mild but definitely has some effect :
    http://www.amazon.co.uk/s/ref=nb_sb_ss_c_0_6?url=search-alias%3Daps&field-keywords=cbd+extract&sprefix=cbd+extract%2Caps%2C148

    This is not spam hopefully, but relevant to thread…

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #96674
    Re: Washbasins

    I am currently looking at this one : http://www.akw-ltd.co.uk/product-listing/ergonomic-concave-washbasin/

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #94102
    Re: Having sex with E.D

    Cialis and Sildenafil actually have beneficial effects on MD, google “Viagra Muscular Dystrophy” to read about it.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #81062
    Re: Viagra / sildenafil as possible treatment for fatigue

    I have been taking Sildenafil for the purpose of treating fatigue and bad circulation for MD.
    I showed the studies to my GP, he said I needed a letter from my specialist saying it was safe and would be effective.
    I got the letter, and now I am taking it on a trial basis while I try work out the dosage.
    As far as I can tell the dosage is about 10-15mg, which is hard to get from a tiny 50mg pill.

    The effects have been dramatic, I will feel more flexible and be in less pain and have more energy for about half a week after a dose. I have never taken any supplement that has felt this beneficial and I have taken everything.

    Edit: I have LGMD2a, which does not effect the heart, so they are probably happier giving it to me than to other types.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #79465
    Re: Mechanical Exoskeletons

    Focal Darwing : https://www.youtube.com/watch?v=vJw8zr5s3S0
    Focal Gowing : https://www.youtube.com/watch?v=tnQsZvepfM8
    Some cheaper alternatives : http://www.medifab.co.nz/products/arm-supports-feeding

    These arm systems are becoming sleeker every year. I imagine these will be the first step for most people as they will be a lot more affordable than whole body equivalents. Seems many of them are currently available too. Will chase up the companies to see if I can get pricing options. These are probably generally not sold to consumers though, couldn’t find a UK distributor either.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #79462
    Re: Mechanical Exoskeletons

    Usually I just update the initial post but I thought I would comment too so people would see it.
    This is a video of the X-Ar arm, it is currently available for £2264.30, made in England, passive (non powered) arm exoskeleton.
    The video actually shows it assisting somebody with MD, the results are quite remarkable:

    https://www.youtube.com/watch?v=ntmHK3c_tg8

    Just contacted the manufacturer here in the UK, they are not licensed to sell it for medical purposes.
    They recommend that I contact these folks in the USA that I have yet to hear back from:
    http://www.lifebeyondbarriers.com/

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #94566
    Re: Hydrotherapy exercises to share?

    Hi there, thanks for that!
    It is a public pool, much cheaper.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #79460
    Re: Cybernetics / Mechanised Exoskeletons

    2014 – EU medical model of lower limb exoskeleton :
    http://www.cyberdyne.jp/english/products/LowerLimb_medical.html

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #77295
    Re: Computer Games Controller Adaptor

    http://www.oneswitch.org.uk/1/AGS/AGS-bespoke.htm

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #81086
    Re: Vitamins, Supplements and Snake Oils.

    I am generally skeptical of things unless there are a few peer reviewed studies. I tried reishi and did not notice much difference. Maybe other people would have different results. Best case you can hope for is that it slows progression, I think rebuilding muscle and function is highly unlikely for anything to do.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #77253
    Re: Viagra clinical trial

    The trial for this should have finished last year, have the results been published?
    There is a similar drug called Cialis that has been getting similar results:
    http://blogs.plos.org/dnascience/2012/11/28/cialis-comes-full-circle-help-for-muscular-dystrophy/

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #81084
    Re: Vitamins, Supplements and Snake Oils.

    This is my current stack that I am very happy with : Dec 2013:

    Zinc 15mg
    Co Enzyme Q10 300mg
    Selenium 200mcg
    Vitamin E 400iu
    Lethicin 1200mg
    Alpha Lipotic Acid 250mg
    Acetyl L-Carnitine 500mg
    L-Taurine 600mg
    CLA (Conjugated linoleic acid) 1000mg
    HMB ( Beta-Hydroxy beta-methylbutyric acid) 3000mg
    EgCg (Epigallocatechin gallate) 850mg
    L-Glutamine 500mg
    Creatine 700mg

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #87066
    Re: Review: Biobidet 1000

    What make and model was the toilet riser you mentioned? Is it a raised seat or does it mechanically elevate you?

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #77294
    Re: Computer Games Controller Adaptor

    http://www.engadget.com/2013/06/21/hack-a-day-modder-builds-a-custom-controller-for-disabled-gamers/

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #89568
    Re: What is the best equipment to get out of the bath?

    What do you use to get into the shower? some sort of chair or walking?
    Do you sit down in the shower? if so how do you stand again?

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #88329
    Re: Easy on shoes

    Flat shoes? I am using a heel riser for extra stability with the contractures.

    Anything with velcro would be good for me too.
    My current shoes are designed like slippers,
    they were popular about six years ago and
    I can not find anything similar to them that I can get on as easily.

    One problem I suspect these might have is that they will be heavy.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #77293
    Re: Computer Games Controller Adaptor

    I have been looking at the Razer Hydra : https://www.youtube.com/watch?v=SKLv8tyL2vU

    Although in terms of modding controllers into anything the makey makey is ace:
    http://www.makeymakey.com/

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #87116
    Re: sativex

    The ingredients per dose of Sativex are 2.7 mg of THC and 2.5 mg of CBD.
    Source : http://www.belowthelion.co.za/sativex-cannabis-mouth-spray/

    The THC is what is generally responsible for psychotic effects and is not as useful as CBD
    CBD has Analgesic, Anti-bacterial, Anti-diabetic, Anti-emetic, Anti-epileptic, Anti-inflammatory,
    Anti-ischemic, Anti-psychotic, Anti-spasmodic, Anxiolytic and Neuroprotective properties.
    Ailment/Cannabinoid Treatment Chart:
    https://legalmarijuanadispensary.com/medical-marijuana-testing

    CBD has been neglected in traditional breeding and THC has been selected for.
    http://www.brainwaving.com/2010/01/29/its-lack-of-balance-that-makes-skunk-cannabis-do-harm/

    There is a new medical strain recently developed that is almost entirely CBD.
    http://uk.reuters.com/article/2012/07/03/us-israel-marijuana-idUSBRE8620FU20120703

    I cant find the link to a recent study but the gist of it was that these things did not actually block pain like traditional painkillers. Instead it basically raised your tolerance for pain instead of numbing the pain itself. This was interesting because it could be a discovery of a whole new class of painkillers that could work alongside traditional ones and have fewer side effects.

    Looking at the documentation it is a schedule 4 drug and is only accepted for the treatment of muscle spasticity in MS patients in the UK. I am not sure what the legality of it is like for other treatments but I guess it couldn’t hurt to ask your doctor.
    If enough people with MD find it useful and a study is funded then maybe it would be approved for use with some of the symptoms of MD.

    I would be interested to hear from anyone if they have found anything that helps in any way.

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
    #79458
    Re: Cybernetics / Mechanised Exoskeletons

    Hal suit ready for worldwide rollout at $2000 a year!
    http://www.businessinsider.com/japanese-robot-suit-approved-for-worldwide-rollout-2013-2

    Chagrin
    Participant
    Posts: 130
    Joined: 04/03/2011
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