Forum Replies Created
December 16, 2015 at 10:34 pm #119528Reply To: Mechanical Exoskeletons
For 500 Euro you can now try out a HAL suit for an hour in Germany:
http://www.accessible-japan.com/walk-assist-robotics-get-approved-in-japan/July 7, 2015 at 9:01 am #87117Re: sativex
CBD is now mainstream, you can actually buy the extract on amazon.
It is pretty mild but definitely has some effect :
This is not spam hopefully, but relevant to thread…July 1, 2015 at 5:31 pm #96674Re: Washbasins
I am currently looking at this one : http://www.akw-ltd.co.uk/product-listing/ergonomic-concave-washbasin/May 30, 2015 at 12:03 pm #81062Re: Viagra / sildenafil as possible treatment for fatigue
I have been taking Sildenafil for the purpose of treating fatigue and bad circulation for MD.
I showed the studies to my GP, he said I needed a letter from my specialist saying it was safe and would be effective.
I got the letter, and now I am taking it on a trial basis while I try work out the dosage.
As far as I can tell the dosage is about 10-15mg, which is hard to get from a tiny 50mg pill.
The effects have been dramatic, I will feel more flexible and be in less pain and have more energy for about half a week after a dose. I have never taken any supplement that has felt this beneficial and I have taken everything.
Edit: I have LGMD2a, which does not effect the heart, so they are probably happier giving it to me than to other types.February 10, 2015 at 6:46 pm #79465Re: Mechanical Exoskeletons
Focal Darwing : https://www.youtube.com/watch?v=vJw8zr5s3S0
Focal Gowing : https://www.youtube.com/watch?v=tnQsZvepfM8
Some cheaper alternatives : http://www.medifab.co.nz/products/arm-supports-feeding
These arm systems are becoming sleeker every year. I imagine these will be the first step for most people as they will be a lot more affordable than whole body equivalents. Seems many of them are currently available too. Will chase up the companies to see if I can get pricing options. These are probably generally not sold to consumers though, couldn’t find a UK distributor either.January 14, 2015 at 9:44 pm #79462Re: Mechanical Exoskeletons
Usually I just update the initial post but I thought I would comment too so people would see it.
This is a video of the X-Ar arm, it is currently available for £2264.30, made in England, passive (non powered) arm exoskeleton.
The video actually shows it assisting somebody with MD, the results are quite remarkable:
Just contacted the manufacturer here in the UK, they are not licensed to sell it for medical purposes.
They recommend that I contact these folks in the USA that I have yet to hear back from:
http://www.lifebeyondbarriers.com/May 20, 2014 at 10:25 am #79460Re: Cybernetics / Mechanised Exoskeletons
2014 – EU medical model of lower limb exoskeleton :
http://www.cyberdyne.jp/english/products/LowerLimb_medical.htmlMarch 13, 2014 at 12:43 am #81086Re: Vitamins, Supplements and Snake Oils.
I am generally skeptical of things unless there are a few peer reviewed studies. I tried reishi and did not notice much difference. Maybe other people would have different results. Best case you can hope for is that it slows progression, I think rebuilding muscle and function is highly unlikely for anything to do.March 12, 2014 at 10:25 am #77253Re: Viagra clinical trial
The trial for this should have finished last year, have the results been published?
There is a similar drug called Cialis that has been getting similar results:
http://blogs.plos.org/dnascience/2012/11/28/cialis-comes-full-circle-help-for-muscular-dystrophy/December 2, 2013 at 1:05 pm #81084Re: Vitamins, Supplements and Snake Oils.
This is my current stack that I am very happy with : Dec 2013:
Co Enzyme Q10 300mg
Vitamin E 400iu
Alpha Lipotic Acid 250mg
Acetyl L-Carnitine 500mg
CLA (Conjugated linoleic acid) 1000mg
HMB ( Beta-Hydroxy beta-methylbutyric acid) 3000mg
EgCg (Epigallocatechin gallate) 850mg
Creatine 700mgJune 21, 2013 at 10:41 am #77294Re: Computer Games Controller AdaptorApril 13, 2013 at 1:11 pm #88329Re: Easy on shoes
Flat shoes? I am using a heel riser for extra stability with the contractures.
Anything with velcro would be good for me too.
My current shoes are designed like slippers,
they were popular about six years ago and
I can not find anything similar to them that I can get on as easily.
One problem I suspect these might have is that they will be heavy.April 12, 2013 at 6:21 pm #77293Re: Computer Games Controller Adaptor
I have been looking at the Razer Hydra : https://www.youtube.com/watch?v=SKLv8tyL2vU
Although in terms of modding controllers into anything the makey makey is ace:
http://www.makeymakey.com/April 10, 2013 at 12:00 pm #87116Re: sativex
The ingredients per dose of Sativex are 2.7 mg of THC and 2.5 mg of CBD.
Source : http://www.belowthelion.co.za/sativex-cannabis-mouth-spray/
The THC is what is generally responsible for psychotic effects and is not as useful as CBD
CBD has Analgesic, Anti-bacterial, Anti-diabetic, Anti-emetic, Anti-epileptic, Anti-inflammatory,
Anti-ischemic, Anti-psychotic, Anti-spasmodic, Anxiolytic and Neuroprotective properties.
Ailment/Cannabinoid Treatment Chart:
CBD has been neglected in traditional breeding and THC has been selected for.
There is a new medical strain recently developed that is almost entirely CBD.
I cant find the link to a recent study but the gist of it was that these things did not actually block pain like traditional painkillers. Instead it basically raised your tolerance for pain instead of numbing the pain itself. This was interesting because it could be a discovery of a whole new class of painkillers that could work alongside traditional ones and have fewer side effects.
Looking at the documentation it is a schedule 4 drug and is only accepted for the treatment of muscle spasticity in MS patients in the UK. I am not sure what the legality of it is like for other treatments but I guess it couldn’t hurt to ask your doctor.
If enough people with MD find it useful and a study is funded then maybe it would be approved for use with some of the symptoms of MD.
I would be interested to hear from anyone if they have found anything that helps in any way.March 2, 2013 at 1:46 pm #79458Re: Cybernetics / Mechanised Exoskeletons
Hal suit ready for worldwide rollout at $2000 a year!