Forum Replies Created
March 16, 2015 at 12:41 am #96334Re: Freedom or Self Dependence
Exactly, sometimes it feels brain and body couldn’t be further apart. I lose my grip and drop things more these days, that is ridiculous in my eyes, I don’t think or feel like I’m that bad.March 15, 2015 at 2:15 am #96332Re: Update on that last post
After sending that post I decided to have another go, it’s not like it’s something you can put off forever. I got on to my bed, took an a4 hardback notebook and put it under the cushion on my chair. This stopped the chair dipping in the middle levelling it off a bit and giving me a little less to climb. After about 30 – 40 minutes, a great deal of effort and the necessary pain, I got there. I’m still going to get the hoist put in because I can’t be dealing with that everytime.
Where there’s a William J, there’s a way.March 14, 2015 at 10:57 pm #96331Re: Freedom or Self Dependence
I struggle with the concept of freedom or self dependence as the same thing. I am to the best I am able, entirely self dependant. Over the last 2 years I have tried to continue to do as much as physically possible for myself. However I am getting weaker by the day it would seem. I can no longer get myself in and out of cars, transferring from chair to bed is getting harder. The latest blow has come in the form of transition to the toilet, I could up until 4 days ago do it, not without effort and some pain. Last night I tried, couldn’t do it, put it down to fatigue. Tried twice today, no luck. I think I’ve gotta take the fall and accept when I’m done. That’s another round to MD, better call the OT and get some hoists fitted. I haven’t told anybody else yet, this is the only place I feel comfortable admitting it. I will talk with my nephew tomorrow. Oh well like the song says, “Bell rings, round over it’s done, until it sounds out for the next one”.
We are all fighters, believe it, it’s true.
Have a Perfect night
Bert xJanuary 14, 2015 at 10:38 am #92059Re: Can you get creative? Let’s make Ranks!!!
I don’t post very often and can go months without visiting the forum. I wouldn’t consider myself a newbie or a regular. part timer is probably too much to describe my status. I’m not sure how many posts I’ve got but I know I’ve had some deep and meaningful conversations with a lot of people on here. I gotta agree with Shelly on quality vs quantity.May 9, 2014 at 8:10 pm #92722Re: Checking in
I told my sister about the electric pillow, so she asked the OT about getting one. The OT said it would be no good becase it would squash me. ???????
I looked up the electric pillow online and for the life of me I can’t understand what she means. Any ideas ?.May 5, 2014 at 5:36 pm #92719Re: Checking in
Hi Cat, hope your keeping well. That electric pillow sounds interesting, I will definitely look into that. I’m normally ok turning in bed but I can’t sleep on my front much any more. If I get my arms trapped under me I can struggle. I woke up a few months ago face down in the pillow and the quilt over my head. I couldn’t free myself and found I might be in trouble. If it wasn’t for the fact that I was able to get Vito to pull the quilt off of me, things could have been quite grimm. I’m lucky I’ve got a smart dog. I might have to look into that turning system aswell.
Yeah they all seem to think they know more about our disability than us. Maybe they are mass produced in a factory.May 5, 2014 at 2:38 am #92717Re: Checking in
Hi everybody, how are ya ?.
I had a chest infection recently and it played a bit of havoc with my damaged lung. I’m ok now but as always when I have a chest infection I can’t lay down in bed for coughing. I decided it may be time to trade in my double bed for an adjustable single bed, just so I can sit up and sleep when I get like that.
So I get an OT round, only the 3rd OT I’ve seen in 20 years. She starts answering my questions about the bed, telling me I can’t get funding for one. Then for some reason she wanted to see me transfer in to bed, the shower and on the toilet. She suggested hoists. I don’t need hoists yet. Maybe one day but for now I’m alright, I tell her. They would be more effort than they are worth and would be a waste of time for me right now. Then she wants to replace my shower seat that is fixed safely to the wall with one of those stupid chairs you get at the swimming pool. I told her that I have used those chairs before at swimming and hydrotherapy, I don’t like them. They can’t take the weight of me leaning on it and move far too much. They are not suitable and potentially quite dangerous. This was followed with a reply straight from a basic psychology txt book, “Often when you do something thinking it won’t work, it doesn’t”. I couldn’t help but chuckle, then I said “yeah I know what a self fulfilling prophecy is. I know what will work for me or not and not based on theory but from experience and knowing how my disability is, it’s experience not theor. She was soon at a loss for words, and as a result ended the visit. She is going to get be a bed raiser whatever the f**k that is.
Are all OTs generic social studies students just ticking boxes on their little piece of paper ?. Or is it just the ones I’ve seen ?. They all seem to be reading from the same script. Do any of them have any actual experience with disabled people ?. Whatever qualifications they need ain’t enough and they need to learn about the real world of disability before they have passed.
Well rant over, enjoy. I look forward to your feedback.
Have a Perfect day
DovitoFebruary 23, 2014 at 10:01 pm #94019Re: Happy Birthday To Bert and Vito…..
Hi guys, thanks for the birthday messages. I’m starting to feel my age, well probably my nans age. Starting to really think about the future. It’s not gradual with me, when I decline it’s in one big hit. Leaves me feeling ambivalent.
Vitos birthday is 29th DecemberMarch 29, 2013 at 9:42 pm #87719Re: In the news
I will never be a wrestler in a big company, but just promoting local British Wrestling shows is gonna be as close as I get. You might never play football for Tottenham, but if you really want to be involved with football there are things you can do. For example set up a charity football match between 2 local teams. Just a thought.March 29, 2013 at 9:28 pm #87717Re: In the news
Thanks Mr Fox, and Woogy
I don’t know how many of you remember a conversation talking about a metaphorical dragon. It was some time ago.
I think this might be my dragon.
Seriously if you really want something, go for it and don’t stop till you get it. I know all of you on here have dreams and aspirations of some kind. Hold on to those dreams because that’s what keeps us going.