I use a NIPPY1 for sleeping over night, and an Elisee in the day. Had a right royal 6 month fight to get the more up to date Elisee. I use it about 18-20 hours, not quite all day yet. I got nasal pillows, love them they are comfy n I get to talk lol! Mask at night, because i tend to breathe through my mouth at night, nice healthy dent in my forehead, but It don’t hurt a lot.
Hi the my name is Ian. I’m 26 and have Duchenne’s MD. I love art and I’ve been a digital artist for over 4 years now, I paint on a program called painter 9, its pretty cool and you only need a mouse to use it. I do mainly digital oil paintings. Last year I started to pick up writing more, I’d always been into writing poems and the odd short story, but back to last year. I wrote my autobiography called DMD, Life art & me. It goes through the first 25 years of my life. I volunteer for another duchenne charity and the proceeds from the book are going to them. Took me 10 months to write, certainly keeps you busy lol.