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  • #77919
    Re: POLL – Non-invasive Ventilation

    I use a NIPPY1 for sleeping over night, and an Elisee in the day. Had a right royal 6 month fight to get the more up to date Elisee. I use it about 18-20 hours, not quite all day yet. I got nasal pillows, love them they are comfy n I get to talk lol! Mask at night, because i tend to breathe through my mouth at night, nice healthy dent in my forehead, but It don’t hurt a lot.

    ianAG
    Participant
    Posts: 2
    Joined: 29/11/2010
    #75849
    Re: Say “hello” here

    Hi the my name is Ian. :) I’m 26 and have Duchenne’s MD. I love art and I’ve been a digital artist for over 4 years now, I paint on a program called painter 9, its pretty cool and you only need a mouse to use it. I do mainly digital oil paintings. Last year I started to pick up writing more, I’d always been into writing poems and the odd short story, but back to last year. I wrote my autobiography called DMD, Life art & me. It goes through the first 25 years of my life. I volunteer for another duchenne charity and the proceeds from the book are going to them. Took me 10 months to write, certainly keeps you busy lol.

    Well thats me!

    ianAG
    Participant
    Posts: 2
    Joined: 29/11/2010
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