Thank you for your kind words. I’m hoping it won’t be much longer as I have children and now grandchildren. I do suspect that some may have the same thing so will be good for them to find out earlier than I have.
Thanks. Yes the neurologist sent me for the emg. I’ve had echocardiogram and spirometry tests as well. Muscle biopsy has been mentioned both at the beginning with neurologist and the registrar and consultant who did the emg test. So a case of wait and see. Thanks for the help and advise