LMBA76

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  • #95016
    Re: Am I the worst mother?

    Hi, first of all you definitely don’t sound like the worst mother. You sound like you have loads on your plate and dealing with a very hard situation. I can certainly empathise for I too have a young child with CMD. We’ve only recently received the diagnosis but the pressure of dealing with the present demands and worrying about the future push me to my limits too. I can’t offer advice or light at the end of the tunnel but would be happy to discuss stuff with you. Id be interested to hear what type of CMD your son has. You describe symptoms that my daughter currently has on is forecast to experience down the road. Hers is also very rare. You posted this a few months back and I have only just joined the forum so i hope things are iimproving for you. Best wishes.

    LMBA76
    Participant
    Posts: 2
    Joined: 21/01/2015
    #95001
    Re: limb girdle 1b

    Hi, my daughter has recently been diagnosed with Limb Girdle 1b. I would be interested in sharing experiences since it is a pretty uncommon type of MD.

    LMBA76
    Participant
    Posts: 2
    Joined: 21/01/2015
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