marcopolo991

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Viewing 20 posts - 1 through 20 (of 27 total)
  • #85284
    Re: live chat on u stream

    9pm?

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #84486
    Re: Take The PIP Test Now…..

    @taungfox wrote:

    @marcopolo991 wrote:

    What happens if you have a disablity that changes over time?What if you have like me have a mix of physical and Mental health problems?My biggist problem is I live on my own and dont have any family or friends to help me out. Such as with cleaning my flat and Im ment to spend my own money on getting a cleaning my self, the other problem I starting to have is getting dressed and undressed. EG. taking my socks and jeans on and off.What support will we have in filling this test out?

    Very good questions and right on the point.

    The whole subject of changing benefits from IB to ESA and DLA to PIP is so worrying for disabled people
    and especially MD people who as you point out have a mixture of of problems and a condition that
    is both rare and variable. As the whole point of these Welfare Reforms is to save money we can do
    nothing other than worry.

    The replacement of DLA with PIP will horefully be fairer and more organised than the IB/ESA fiasco. The
    minister Dr Feud promised in Parliament that the system will be fully tested before it goes live
    and that the test will be fine tuned with the help of disability organisations. We hope he will
    be made to live up to these promises.

    Living on your own with MD I can totally empathise with. Over the last fifteen years I have found
    a new rule of physics that the number of MD symptoms you display is inversely proportional
    to the number of visitors and helpers that you have. A lot of them are the same ones that
    abandoned my mother a generation ago.

    Filling out the forms is a problem. On this one us MD are better off than most. The last two times
    the MD care advisor has come to me and actually written every word for me. They are also
    experts in knowing what points you should be drawing attention to in your claim.

    Here is a list of the regional care advisors. They are extremely good !!

    http://www.muscular-dystrophy.org/how_we_help_you/care_and_support/care_advisors

    Hey thanks for that mate. scary times ahead and not just sonic booms lol!

    I been talking a regional care advisors called Louise Gethin. Who has been really helpfull in the last few years since leaving uni. I think I should of talk to one of them before I went to uni thinking about it now.

    The main thing I’m worried about is losing my car..

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85281
    Re: live chat on u stream

    @taungfox wrote:

    @marcopolo991 wrote:

    What do I have to do to join?

    Watch this space.

    Karl will presumably post in advance here in good time.

    You do have to sign up once with a password to ustream.

    (if you watched the national conference those login details will do)

    Ah I missed it lol!

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85163
    Re: temporary wheelchair.

    Cool will try Freecycle out as I’m a member.

    Cant beleave I didnt think about that site lol!

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85282
    Re: live chat on u stream

    What do I have to do to join?

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85142
    Re: physiotherapy

    physiotherapy is useless i find, they never want to do anything.. Waste of my time!

    once a week? What a joke I only ever see one of these people once every 3 years it feels like it.

    You miss one appointment and thats it you never hear from them again.

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85129
    Re: FSH-MD Summer Get Together 2012

    Wish I had the money to go..

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85265
    Re: I want to meet more ppl with MD

    Miss read that lol!

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85264
    Re: I want to meet more ppl with MD

    Nice cut my legs off what I need lol!

    Well Im part of trailblazers so I guess thats a start, so Im trying lol!

    I will try the links and other stuff you guys have said.

    Please keep adding stuff to this post, might help others too.

    Just where I come from meeting other disabled people is hard but I only live in Wiltshire lol!

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85222
    Re: Break Out The Hats And Hooters…..!!!!..

    Nice :D

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85124
    Re: Power Wheels

    I heard some bad things about the Da Vinci trikes, thats why I’m looking into getting The viper from team hybrid.

    The reason I want the Viper is I wont beable to get a scooter in and out of the car. As a scooter is to heavy for me to left it in and out.

    Great to see people talking about this thoguh…

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85156
    Re: Carers versus Atos’s attempts to protect its image – vid

    @amgmod wrote:

    http://www.guardian.co.uk/commentisfree/video/2012/apr/06/carers-versus-atos-image-video?CMP=twt_gu

    Link direct to the Guardian for those who do not use Facebook.

    I remember when it hit the headlines about that Carer’s Forum being taken off line by Atos.

    Sorry about that guys, I forgot it was on fb lol!!

    Thanks for putting a link up.

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85122
    Re: Power Wheels

    By the way I found this on ebay that might be of help

    http://www.ebay.co.uk/itm/PDQ-Power-Trike-Wheelchair-Adapter-/251032978302?pt=UK_Health_Beauty_Mobility_Disability_Medical_ET&hash=item3a72bb437e

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85120
    Re: Power Wheels

    hmmm wonder where my post went about this subject. Anyway I found these guys called Team Hybrid they do the Viper which attaches to the front of almost any rigid frame wheelchair within seconds once the docking system has been fitted.

    I’m thinking of getting one of these my self.

    Here’s a link to Team Hybrid’s website.

    http://www.teamhybrid.co.uk/handcycles/powered/viper.htm

    I think this looks cooler than the other stuff on the market.

    You can see the videos of the Viper on youtube if you look under Team Hybrid.

    Plus Mark who run Team Hybrid is very usefull too.

    Hope that helps.

    Marc

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #84932
    Re: wishy washy scrubby thingy

    I had one at uni, but a drunk mate used it for a loo prush lol!!

    :lol: :lol:

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85103
    Re: powered front wheel for wheelchirs

    Its going to be a few months before I even get assessed.

    Hope I get it all sorted though, it would change me life, means I could out on day trips with my mates without worrying about getting tired.

    I’ll keep people informed…

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #83808
    Re: Gamers looking for other players…

    @ClaireF wrote:

    @marcopolo991 wrote:

    Hey any of you guys playing World of Tanks, Tribes Ascend or Eve Online?

    I might even be push to play some other MMOs, such as Skyrim or WoW. Havent played wow in awhile thoguh.

    I dont own an xbox or a ps3 though, not my thing lol!

    I’d love to play Eve online, it looks great, sadly my pc might throw a fit (need to upgrade lol)

    Its a bit strange as you have to play it like a full time job sometimes lol!

    What is your pc set up (Im not a nerd so dont know the right names for things lol)?

    My mate helped me sort mine out about 2 years back…

    Oh Oh I know a game you could do called Minecraft!!!

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #83807
    Re: Gamers looking for other players…

    Hey any of you guys playing World of Tanks, Tribes Ascend or Eve Online?

    I might even be push to play some other MMOs, such as Skyrim or WoW. Havent played wow in awhile thoguh.

    I dont own an xbox or a ps3 though, not my thing lol!

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #84921
    Re: had major problems with wheelchair services?

    hmmmm give me a shout in a few months time, I might have something to say regarding this issue..

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
    #85102
    Re: powered front wheel for wheelchirs

    http://www.teamhybrid.co.uk/

    http://www.teamhybrid.co.uk/images/handcycles/viper1lg.jpg

    Right after a look about my self I have found these guys.

    Fingers crossed I can get the money to get one of the Vipers, it would change my life…

    marcopolo991
    Participant
    Posts: 33
    Joined: 21/10/2010
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