I live with Becker's variant Myotonia Congenita, which is a rare muscle condition. For most of my life I went undiagnosed but knew that there was something different about me. My spinal column has also been damaged by Spina Bifida and this has impaired my mobility. Despite, or even in spite, of my disability I live a very full life. I am married with two children and I work full time. I am interested in reading and writing, painting and drawing, listening to music and going to gigs, travelling, cooking, attending the cinema and theatre, and driving my modified car.