rachelmurphy

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Viewing 13 posts - 41 through 53 (of 53 total)
  • #83325
    Re: Having MD and being a parent.

    hi joe
    firstly ‘congratulations’ for your bundle of joy .
    i had my daughter 18 yrs ago ….my md started to show before i got pregnant . i got diagnosed when she was 8 years old . i knew deep down i had a problem but i chose to ignore haha . i was struggling with lifting , bathing her, but i was lucky enough to have her dad or my mum around to help me . i found pushing the pram great as it was a support . As she got older it got easier as she got more independent ….thats when i started to fall over more frequently and couldnt get myself up , people used to stare and my daughter was getting upset that my mum demanded i got to the docs and find out what was wrong . I am so glad i had my daughter when i did as i know i definately couldnt cope now … i suppose what i am saying , with help and support you will be a fantastic father and dont beat yourself up with the things you cant do just enjoy the things you can , i found swimming was great with her by the way

    rach x

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #83280
    Re: travel insurance

    just phoned my brother and he gave me a number to phone ….A-plan farnham travel 01252 728316 hope this is some help

    rach x

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #83279
    Re: travel insurance

    hiya
    i found the same problem a few years ago when we were going to gran canaria for a holiday …rung round lots of insurance companies who were quoting ridiculaous prices, then i remembered my brother who is an insurance broker for A- plan . I rung him and he put me through to their travel insurance department and if i can remember correctly i paid only £47 …if it is any help i can find out more for you

    rach x

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #83242
    Re: is it too much to ask for a good nights zzzz ?

    hi shazadh
    thanks for your reply …i have sent you a pm

    rach x

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #83202
    Re: Face book

    hi carl
    thanks for this …i will definately check it out and will add you . hope you are well ?
    best wishes
    rachel x

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #82979
    Re: Dare I Ask…..Dating? Relationships?

    hi …just to say i was in a marriage for 16 years .i got diagnosed 10 years ago …i separated from my husband 3 years ago and shortly after met my now new husband . We met on facebokk chatting to start of with and i was totally honest with him from day dot so he wasnt shocked when i met him . I honestly think its the best way to be , he asked lots of questions on our first meeting and he came to all my meetings with my consultants …my md has deteriorated since i have been with him but we get through any difficulty together …he is my primary carer now (his choice) and we couldnt be happier :D

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #82788
    Re: disabled parking

    haha .. the t shirt is a great idea , although getting a little chilly atm . My husband has asked sainsburys if a security guard could possible patrol the disabled parking bays but was told that a clamping firm (which there is a sign ) patrols them . When he asked how often we were told once a month as the company is based in London …we are in west sussex ! i suppose until the problem is taken seriously then poeple will continue to abuse the disabled parking and we will continue to suffer the stares !

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #82524
    Re: what beinfits am i entiteled to nd how much?

    hi everyone … i feel really lucky with this one ! i applied for dla when i got diagnosed 10 years ago and was at first awarded top rate mobility and no care . My consultant when i saw him told me to re-apply for the care component but do it with the help from the citizens advice bureau as they have benefit advisers that can help . I did that and for 9 and a half years have received high rate care and mobility … i would definately recommend to get in touch with them :D

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #82293
    Re: so angry

    tip of the iceburg i think …. it would be great if everyone who faces cuts could stand together whether that be with learning difficulties, elderly or disabled ,md, ms etc ….it just seems to be a way of ‘pick on the vulnerable’ , easy target if you ask me ! what will it take …someone to die that has had their funding cut and then the council sued before they realise that they have made a terrible mistake ….disgraceful !

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #82291
    Re: so angry

    a spokesman from the md campaign spoke up for this gentleman on meridian tonight and stressed their disbelief and disgust , however to no avail as this case has already gone through an appeal and was turned down ….how can people justify this ? im waiting now for my re-assessment and am now dreading what the outcome will be !

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #79018
    Re: pain relief for LGMD

    hi everyone … just to say i saw my consultant a couple of months ago and i mentioned the pain i was getting to him and he told me that md was painless !! it just goes to show , with the replies on here , what does he know , eh x

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #79007
    Re: pain relief for LGMD

    its funny you mention dizzy spells …. i have these as well . Havent been prescribed anything for it though … all in all , roll on the summer and we all start to feel better eh x :D

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
    #79003
    Re: pain relief for LGMD

    hi again … thankyou for all your replies. I saw my GP and he prescribed a sleeping tablet as i keep waking my husband up at night to help turn me over …lol bless him, and tramadol and paracetamol during the day . pain seems bearable at the mo , which is goood ! hope you guys are ok ? :D

    rachelmurphy
    Participant
    Posts: 65
    Joined: 02/02/2011
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