Good evening Steve, My husband was diagnosed with BMD over Christmas. We are waiting on an appointment in March to see a specialist in London
After that we will see a genetic counsellor about who it may have been passed down to and where we stand on starting a family. He is 29.
We are in the East midlands. It would be fantastic if we could chat as we are both at a loss about what to do until March, and as of yet, I’ve found no books or advice on management available.
Some questions for you if you don’t mind?
What sort of job do you do?
Was there anything to take away muscle aches, tiredness etc?
And do you have children?