Forum Replies Created
April 10, 2012 at 1:08 pm #85203Re: Height adjustable beds / Bed raisers / memory foam mattr
I have a profiling/nursing bed with a foam mattress. Here’s a link to one very similar:
The mattress is not [as far as I know] memory foam but does help prevent pressure sores for anyone who has to spend a lot of time in bed.
I agree with Vicki about chatting to an occupational therapist before ordering one if you possibly can, if not, then try ringing or emailing some specialised companies that make them and asking for brochures/leaflets and advice. If you put “profiling / nursing beds” into Google, you will get a fair selection of companies to choose from.
I love my bed – it’s not only comfortable but the fact that it’s so adjustable means I can lower it to about 12 inches if I want to in order to get in and then raise it up pretty high when I need help to do exercises etc.
SybApril 2, 2012 at 2:38 pm #85118Re: Power Wheels
I bought a power pack [made by TGA] for my manual wheelchair several years ago. It attaches between the back wheels and the controller fixes to one of the push handles so it is helpful to the wheelchair pusher when going up hills or over grass or rough ground. This is the link to their website:
This is probably not what you had in mind though – I imagine you want your son to be independent so his mates don’t need to push his wheelchair. This is something I just found on the internet, that might be of interest, though it may not be suitable:
I hope this helps.
March 23, 2012 at 12:28 pm #84907Re: Happy Birthday Cat…
Do you think it would be bad form to MEMO the MEDICOs who told us I wouldnt live till 30. :!: :!: :!:
Not bad form at all, Cat – they should be pleased to be proved wrong.
SybyllaMarch 17, 2012 at 12:41 pm #84799Re: Disabled access to me house at last.
so I’m up and down a few times before I can actually get off the the level i wanted. neibours must think Im nuts.
Cat, you’re just going by the scenic route, that’s all !
Will let you know when my lift is in action….I won’t have computer access for a few days as we’ve got to move my desk but I’ll be back as soon as possible.
I am so glad I joined this forum – I don’t feel so alone now that I know so many more people with MD. Thanks folks, for being there!
SybyllaMarch 17, 2012 at 12:31 pm #84870Re: My daughter is Newly diagnosed Merosin deficient
I’m really sorry to hear your devastating news. I have no experience of CMD but I am sure if there is anyone in the group who can help, they will get in touch, so keep checking this forum.
You’ve obviously been on the website, so maybe it would also be worth sending an email to email@example.com
to ask for more advice and assistance with this diagnosis from the professional team at the MD Campaign HQ. There are publications available but it seems to me you need someone to talk to [face to face or by email or phone], and maybe that’s something that they can help with.
SybyllaMarch 16, 2012 at 12:54 pm #84795Re: Disabled access to me house at last.
Not the lift i wanted but has made a great differencein the last few days already.
I am so pleased you are benefitting Cat, even though it’s not quite what you wanted…..I am having a through floor lift installed next week and am really looking forward to going back to my own bedroom and having a proper bath again after 3+ months sleeping in the spare room downstairs.
You’ll have to remember to take a stick with you to poke the button!
SybMarch 14, 2012 at 11:36 am #84788Re: Disabled access to me house at last.
lift in …. it dont work.. OMG
my nice flat drive now a potential ski slop for next winter (or next weeks predicted snow)
What’s the problem? Is it the power supply or is it that it’s not working for your needs?
Are they going to rectify it?
They can’t leave you stranded, surely?
SybMarch 4, 2012 at 12:40 pm #84775Re: Disabled access to me house at last.
looking at the plan today, I dont think Im getting what was orignaly talked about. the leaflet given on the sight visit pre teneder for all 3 companies was a Terry lift melody 2 but on the drawn plan left while I was out on friday its a terry TSL1000. me hopes it will be ok. the Melody is a level entry with gate (which I liked as it would keep out horride children) the TSL 1000 has an auto mini drop down ramp, its a plus that the entry on this lift is auto but I hope I dont have issues steping over mini ramp or that its not to slippy for my walker or walking stickes. paranoid much
I’ve just looked on the Terry website and can see what you mean about the 2 different lifts. The one with the gate would be preferable….I can understand you getting a bit paranoid about it all. I would be too. But when the installers arrive tomorrow, just ask them first what they are providing you with and if it’s not what you want or is unsuitable you must tell them. After all, you have to think of your safety first and if they’ve made a mistake on the paperwork you shouldn’t have to live with the results.
I hope all goes well, Cat. Keep us posted!
SybyllaFebruary 28, 2012 at 3:20 pm #84706Re: Adjustable Beds
I have got a profiling bed and can recommend it. You can raise the back up and have your legs raised or bent at the knee if you want. Mine goes really low to the ground so I can lift my legs up to get into bed, and it also goes up high enough to allow carers to wash me without straining their backs. The one I have came from this range I believe, but other manufacturers do them too:
The side rails are useful on occasion but don’t look unattractive when they are down.
They ARE expensive but well worth the money if you need one. I would recommend deciding how much you can spend, what functions you want it to have [height adjustment, etc.] and then do some research online. Just search in google for “nursing beds/profiling beds”. I did all that and then went to my local mobility shop and asked them to order it for me. They then delivered it and fitted it together for me. Good luck!
SybyllaFebruary 23, 2012 at 3:14 pm #84668Re: time to go in a chair?
Deciding to use a wheelchair was a traumatic business for me. It was about thirty years ago and you didn’t see many people in wheelchairs back in the early 1980s. Scooters weren’t about then either. I was about 24 at the time and was getting really worn out whenever I went shopping that I had to stop and sit down in various places in order to rest. I hated being seen in the wheelchair and apart from my family and immediate friends, my work colleagues didn’t know I needed a wheelchair. I didn’t like feeling conspicuous.
As time has gone on I’ve become a full-time wheelchair-user and now I don’t mind being seen in it. I have learnt to realise that it gives me freedom I wouldn’t have otherwise, and it keeps me safe. I can’t afford to fall and injure myself [due to other health issues] so my attitude is that a wheelchair is now a part of me.
The battery on my ten year old powerchair is new but doesn’t last long before it needs charging. The manual says I should be able to do about five miles in the chair, but I’ve never got anywhere near that. I’m due for an assessment at my rehab centre next week and am hoping I’ll be provided with a more modern chair with a longer-range battery.February 16, 2012 at 1:09 pm #84161Re: What Line Is It Anyway?
Here’s a couple of songs my mum used to get the words wrong with:
“My White Bicycle” turned into “My Wife’s Five Sisters”
“Love Lift Us Up Where we Belong” turned into “No Lift Goes up where we Belong”….
and then there’s that Madonna song about the girl with “eyes like potatoes” [can’t remember the name of it]