A Wish for Eben

Our son, Eben, was born in December 2018. After two and a half years of medical investigation, we were finally given a diagnosis of Ullrich Congenital Muscular Dystrophy.
Our son, Eben, was born in December 2018. After two and a half years of medical investigation, we were finally given a diagnosis of Ullrich Congenital Muscular Dystrophy.

Leeds Children’s Hospital NHS Trust

The Leeds Children’s Hospital is recognised by Muscular Dystrophy UK as a Paediatric Centre of Clinical Excellence. The Paediatric Neuromuscular Disease Unit at Leeds Teaching Hospitals Trust cares for children and young adults with rare and complex conditions affecting muscle function. The centre provides services across the region.
The Leeds Children’s Hospital is recognised by Muscular Dystrophy UK as a Paediatric Centre of Clinical Excellence. The Paediatric Neuromuscular Disease Unit at Leeds Teaching Hospitals Trust cares for children and young adults with rare and complex conditions affecting muscle function. The centre provides services across the region.
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