West Midlands Neuromuscular Network

The West Midlands Neuromuscular Network seeks to improve access to neuromuscular care across the region.

Steering Group 

The network is chaired by Professor Tracey Willis, Consultant Paediatric Neurologist with a Specialty Interest in Neuromuscular Disorders and Bryan Gould.

The Steering Group has representatives across the following services: 

  • The Robert Jones and Agnes Hunt Orthopaedic Hospital and Birmingham Children’s Hospital
  • Birmingham Heartlands Hospital and Birmingham Children’s Hospital 
  • West Midlands Rehab Centre 
  • Queen Elizabeth Hospital Birmingham 
  • University Hospital North Staffordshire 
  • Heart of England Hospital 
  • University Hospitals Coventry and Warwickshire 
  • Muscular Dystrophy Support Centre 

Objectives of the network 

  • The network meets three times a year to discuss current developments in the area, including: 
  • Support the coordination of neuromuscular care across primary, secondary, and tertiary services.
  • Promote awareness of service provision across the West Midlands, looking at hospital services, patient flows, outreach clinics and local and independent support services.
  • Identify and share good practice, promoting emergency care plans and care guides
  • Ensure neuromuscular disorders and associated needs are understood by commissioners and local teams resulting in more effective care

Network achievements to date 

  • Secured cough assist commissioning policies for CCGs across much of the region
  • Played a role in securing investment in 9 new NHS funded neuromuscular MDT roles across the region since 2013 
  • Network ‘upskilling’ events for GPs, physios and therapists based in West Midlands 
  • Family support events across the region