The West Midlands Neuromuscular Network seeks to improve access to neuromuscular care across the region.
The network is chaired by Professor Tracey Willis, Consultant Paediatric Neurologist with a Specialty Interest in Neuromuscular Disorders and Bryan Gould.
The Steering Group has representatives across the following services:
- The Robert Jones and Agnes Hunt Orthopaedic Hospital and Birmingham Children’s Hospital
- Birmingham Heartlands Hospital and Birmingham Children’s Hospital
- West Midlands Rehab Centre
- Queen Elizabeth Hospital Birmingham
- University Hospital North Staffordshire
- Heart of England Hospital
- University Hospitals Coventry and Warwickshire
- Muscular Dystrophy Support Centre
Objectives of the network
- The network meets three times a year to discuss current developments in the area, including:
- Support the coordination of neuromuscular care across primary, secondary, and tertiary services.
- Promote awareness of service provision across the West Midlands, looking at hospital services, patient flows, outreach clinics and local and independent support services.
- Identify and share good practice, promoting emergency care plans and care guides
- Ensure neuromuscular disorders and associated needs are understood by commissioners and local teams resulting in more effective care
Network achievements to date
- Secured cough assist commissioning policies for CCGs across much of the region
- Played a role in securing investment in 9 new NHS funded neuromuscular MDT roles across the region since 2013
- Network ‘upskilling’ events for GPs, physios and therapists based in West Midlands
- Family support events across the region