Vicki volunteers for us over on our forum, TalkMD. TalkMD is a great place to share experiences, ask questions, and meet other people affected by muscle-wasting conditions, in a friendly and safe environment. Our four fantastic Moderators are always happy to share their experiences of living with muscle-wasting conditions and offer their support by answering questions.
Vicki recently told us a little bit more about herself and why she chose to get involved with TalkMD.
I’m very independent, well, as much as I can be given the circumstances. I was diagnosed with muscular dystrophy when I was eight years old and told that I wouldn’t live past 20. I’m now 40 years old and still going strong.
I live on my own and employ a team of 7 carers who help with all aspects of day to day living. I have four very pampered cats – one of whom will only eat prawns and Dreamies! It’s not possible for me to work so I keep busy with a few hobbies. I enjoy reading, going to the cinema, concerts and crocheting, a new skills which my fellow TalkMD Moderator, Annemarie, introduced me to. I love tattoos and currently have three, but I’d like to get a couple more.
I love visiting new places and travel when I can. Several years ago I travelled to Hong Kong to see my brother, but like most things where a wheelchair and a mobile hoist are involved things not everything went to plan. However, I lived to tell the tale!
At some stage I plan on winning the Euro Millions and opening a chain of fully equipped, accessible hotels with the money – and of course buy a cattery too. You have to have dreams, right? I decided to apply for being a moderator of TalkMD as I wanted to be more involved with the Muscular Dystrophy Campaign and this seemed to be the best way to get stuck in. I feel that those of us who are older and have more experience of muscular dystrophy and its related issues have a lot to offer those who are newly diagnosed or who don’t know where else to turn. TalkMD holds a wealth of knowledge as well as a place for friendship and just somewhere where people know they are not alone. That’s what I wanted to be a part of and I haven’t looked back since!