The women in the Goldthrite family, from Neath in South Glamorgan, have a special bond. Mum, Michelle, was diagnosed with FSH in 1994. After noticing the same symptoms in her daughters, Sadie (12) was diagnosed in 2011 and Abbie (10) in 2013.
They have been involved with the charity since 2011 and have taken much support from it.
“When Sadie was diagnosed with FSH, we contacted the Muscular Dystrophy Campaign and our local Volunteer Fundraising Manager at the time, Andy, encouraged us to get involved in the South West Wales branch. We did just that, and they have been a massive support and a great help to us,” said Michelle.
The family wanted to do something for the charity and raised more than £1,400 in 2013 by organising a fundraising walk and disco at the local Naval Club. They attracted more than 70 people and rallied the local community.
What made these fundraising events unique was that they were organised by Sadie, age 10 at the time, with assistance from her little sister Abbie.
They are positive in their outlook, and are hoping to do some more fundraising in 2015.
“We have a few ideas in the pipeline,” says Abbie.
“I think it’s important to raise money for the Muscular Dystrophy Campaign because so many people have muscular dystrophy and there are many different types. If we raise money for research, there may not be so many people with it in the future,” said Sadie.
Michelle simply says, “My daughters are superheroes.”