Ellena Valizadeh, from Lewisham, London, made sure her son, George, 4, had a Halloween he wouldn’t forget, turning his wheelchair into a Batmobile so he could enjoy trick or treating like any other child:
“George has rigid spine syndrome, a condition which causes his muscles to weaken and waste. He was diagnosed when he was a year old, and as his condition progresses, he uses a wheelchair more and more regularly.
“He has always loved Halloween, and when George was younger, we would take him trick or treating in his pushchair.
“We wanted George to be excited about Halloween again this year, so I talked to him, and his younger brother, Arlo, about dressing up as their favourite superheroes, Batman and Robin. They loved the idea, and my husband got to work straight away, transforming his wheelchair into a Batmobile.”
“The boys absolutely loved trick or treating this year, they ended up with buckets full of goodies. All our neighbours were asking George about his Batmobile, and were interested to find out about his condition.
“When my husband and I talk to George about his condition, we refer to his superhero powers – his wheelchair, and his gastrostomy tube that he sometimes uses for feeding. Talking this way, allows George to understand how he is different to other children, and it helps us look at things positively.
“Muscular Dystrophy UK has been a huge help to our family – offering us both practical advice, and emotional support through their helpline.
“We’re already thinking about next year’s Halloween costumes!”
At Muscular Dystrophy UK, we support individuals and families who are affected by more than 60 rare and very rare muscle-weakening and wasting conditions. If you want more information on any condition, or how to get involved, please get in touch.