Duchenne Muscular Dystrophy
Eighteen-year-old musician, Jason Weaver from Cheshire, dreams of the day he can break into the international music scene. A tough gig for any budding singer/songwriter. Even tougher when local venues aren’t accessible to wheelchair users.
Jason, a history student at Worcester University, was diagnosed with Duchenne muscular dystrophy at the age of eight.
“While I don’t like the fact that many venues aren’t accessible – especially locally – I don’t think it will stop me in the long run. I hope I’m not proved wrong,” he said.
“Music gives me hope that things will get better.”
It was in December 2005 that Jason was diagnosed with Duchenne muscular dystrophy. He said it was just a surprise to him – a child with not a care in the world.
“I wasn’t that aware of why I was having tests, getting orthotics and having physio all the time. I just thought that was what happened to every other child. Then I went to Oswestry Hospital and was diagnosed with Duchenne muscular dystrophy.
“My parents took it hard, as they would. While I’d like to think I take the brunt of my condition and deal with it myself, my parents have supported me through this remarkably.
“What would I say to a young person just diagnosed with Duchenne muscular dystrophy? Cherish the people around you – friends and family in particular. More importantly, don’t think your disability defines you because it doesn’t. You’re the same person inside; you may even grow in character as a result – like I have.”
Jason has only recently personally become involved with the charity, and has enjoyed being part of a support network. Knowing there is a community willing to share their experiences and help him cope with his disability not only in the music world, but in general, has been helpful.
“I hope to go to the United States soon to write music for other people and, I hope, climb the ladder of success. Mostly, I don’t want my disability to be a hindrance or a reason why people listen to me. I am a musician. I just happen to have a disability.”