Laura Bizzey on being a Trailblazer

Through Trailblazers I can use my disability to help others in a similar situation to myself.

Laura Bizzey (19) from Suffolk has Minicore Myopathy Muscular Dystrophy.

Laura is one of our Trailblazers, a network of more than 600 young disabled people who campaign for change and provide guidance on issues that affect them. As a charity, we are committed to providing services and opportunities to help disabled people live as independently as possible.

Below she tells us a little bit about what Trailblazers do and why she has enjoyed being a part of Trailblazers.

When you’re young it’s hard to have your voice heard; to know where you fit in; to pioneer for changes which you are passionate about and it’s scary to think about the future. When you’re a young person with a disability, well, those issues get even harder.

From the age of 8 years old, I had been diagnosed and was aware that I had Minicore Myopathy Muscular Dystrophy (MMMD). Looking amongst society and into the public eye there weren’t any disabled role models. Over the years this has been an issue for me as I have had no one to relate to.

When I was about 15 years old someone at Muscular Dystrophy UK put me in touch with Trailblazers. Being a member of Trailblazers enabled me to be part of an inspirational group of young disabled people. It gave me the confidence, motivation and assurance that I can go on to achieve anything that a regular person can achieve.

I started contributing by filling out the surveys that were emailed and slowly I got my confidence and began to speak out and contribute more and more. Being a Trailblazer gave me the opportunity to speak out about issues I’m passionate about, have my voice heard and help pioneer for change with the issues that disabled people face in today’s society.

I’ve also had the opportunity to attend amazing events, such as the All Party Parliamentary Group (APPG) for Young Disabled People in Westminster, where we get to talk about the issues we face with MPs and Peers.

Earlier this year, Muscular Dystrophy UK were contacted by BBC Three because they were making a drama featuring a character with my condition. I had the incredible, once in a lifetime experience to advise on this television portrayal of Minicore Myopathy Muscular Dystrophy. If I hadn’t been a Trailblazer, this would never have happened.

Through Trailblazers I can use my disability to help others in a similar situation to myself. If you are a young disabled person who would like to be a member of Trailblazers, then I would encourage you to sign up and join us in raising awareness and pioneering for change.

If you’d like to find out about getting involved in the Trailblazers network, please contact us on 020 7803 4807 or trailblazers@musculardystrophyuk.org

Keep in touch