As the leading charity driving up standards of care in muscle centres, and improving services, we want to make sure everyone living with a muscle-wasting condition gets excellent care.
The Centres of Excellence awards review began in 2012 and takes place every three years. It involves a rigorous assessment of neuromuscular services by a panel of experts to help improve clinical care, so people can get access to the services they need, without which clinical trials cannot take place.
Our Services Development Committee leads the review process. The Committee, chaired by Baroness Thomas of Winchester who has Pompe disease, includes leading neuromuscular clinicians, patient representatives and a specialist NHS commissioner. Professor Martin Bobrow, an eminent geneticist and former Chair of Muscular Dystrophy UK, returned in 2018 to chair the group developing the award criteria.
People with muscle-wasting conditions can take part in the 2018 review by completing our online survey and sending it to David Stephenson at firstname.lastname@example.org by Wednesday 31st October 2018. There is also an opportunity to feedback at our autumn round of Muscle Group meetings.
Our goal at Muscular Dystrophy UK is to work to improve the standard of care provided at all UK neuromuscular centres, for everyone living with a muscle-wasting condition. By awarding Centre of Excellence status, we are recognising and congratulating centres that provide a full and comprehensive service to a wide range of people with muscle-wasting conditions. These centres not only provide specialist associated neuromuscular services but also promote best practice locally and nationally.
In 2015, 10 centres across the UK were awarded ‘excellence’ status. These centres showed an extremely high standard of clinical care and comprehensive diagnostic services, and were active in both audit and research activity:
- Wessex Neurological Centre, Southampton General Hospital, Southampton (Adult Centre for Clinical Excellence)
- The Addenbrooke’s Neuromuscular Service, Cambridge (Adult and Paediatric Centre for Clinical Excellence)
- Robert Jones and Agnes Hunt Orthopaedic NHS Trust, Oswestry(Adult and Paediatric Centre for Clinical Excellence)
- Dubowitz Neuromuscular Centre, Great Ormond Street Hospital, London (Paediatric Centre for Research and Clinical Excellence)
- The National Hospital for Neurology and Neurosurgery, London(Adult Centre for Research and Clinical Excellence)
- The John Walton Muscular Dystrophy Research Centre, Newcastle (Adult and Paediatric Centre for Research and Clinical Excellence)
- John Radcliffe Hospital, Oxford (Adult and Paediatric Centre for Research and Clinical Excellence)
- The Walton Centre, Liverpool (Adult Centre for Clinical Excellence)
- Leeds Children’s Hospital NHS Trust (Paediatric Centre for Clinical Excellence)
- Alder Hey Children’s Hospital NHS Foundation Trust, Liverpool(Paediatric Centre for Clinical Excellence)
In summer 2019, there will also be an audit of Networks of Clinical Excellence. The first such audit, which took place in 2016, awarded ‘excellence’ status to networks in Scotland, the North West and the South West.
For more information about the Centres of Excellence Awards please email David at email@example.com.