We campaign to improve the quality of life of people who live with a muscle-wasting condition and for them to have access to the specialist healthcare, welfare support and emerging treatments they need, as soon as possible.
We do this by bringing them together with healthcare professionals and decision makers within the NHS. And by making sure their voices are heard in Parliaments across the UK.
Government announce plans to make air travel easier
First Employers Working Group meeting held at Guildhall
Fully funded employability conference to take place in May
Government announce new measures for wheelchair users on buses