We campaign to improve the quality of life of people who live with muscle-wasting condition and for them to have access to the specialist healthcare, welfare support and emerging treatments they need, as soon as possible.
We do this by bringing them together with health professionals and NHS decision-makers. And we help them lobby for support from parliaments and assemblies across the UK.
We ensure their voices are heard – and the force of our combined numbers means we cannot be ignored.
We are most effective when we work together. Join us in our campaigns.
Trailblazers mentioned in debate on Disabled Students' allowance
Michaela named Point of Light
Access problems at football grounds highlighted
for the All Party Parliamentary Group for Young Disabled People