We campaign to improve the quality of life of people who live with a muscle-wasting condition and for them to have access to the specialist healthcare, welfare support and emerging treatments they need, as soon as possible.
We do this by bringing them together with healthcare professionals and decision makers within the NHS. And by making sure their voices are heard in Parliaments across the UK.
New investigation launched focusing on accessible tourism
Trailblazers met politicians at Westminster yesterday
Trailblazers latest Q&A focused on live music
Trailblazers in NI met with MCD Productions in Belfast