When you have a muscle-wasting condition – or are supporting someone who has – it’s vital to have access to the right information and advice. We’re here to help you get the support and care you need, wherever you live.

Whether you want to know more about a condition or about the practicalities of living with a muscle-wasting conditions, we’re here for you.

We offer a personal support system for people at their point of need, with a specialist helpline and free information. Last year we responded to more than 25,000 requests for help.

We can help you get the equipment, services and financial support you are entitled to. We can put you in touch with someone who knows what it’s like to live with muscle-wasting conditions. And our Support hub can show you support and services near you – including specialist teams and NHS Centres of Excellence.



  • Zoe_Hallam_cup2.jpg

    Limb-girdle muscular dystrophy cards launched

    Alert cards for people with limb-girdle MD now available to order

    Read more »

  • Emily-bonner

    Emily is helped by Advocacy Ambassador Andy

    ''It's amazing to talk to someone who understands''

    Read more »

  • general research

    Doctoral Fellowship in Northern Ireland

    A new call opens for neuromuscular research in Northern Ireland

    Read more »

  • Dave Barclay photo

    Friends take on Mount Kilimanjaro

    Two friends take on Mount Kilimanjaro to raise funds

    Read more »

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