When you have a muscle-wasting condition – or are supporting someone who has – it’s vital to have access to the right information and advice. We’re here to help you get the support and care you need, wherever you live.
Whether you want to know more about a condition or about the practicalities of living with a muscle-wasting conditions, we’re here for you.
We offer a personal support system for people at their point of need, with a specialist helpline and free information. Last year we responded to more than 25,000 requests for help.
We can help you get the equipment, services and financial support you are entitled to. We can put you in touch with someone who knows what it’s like to live with muscle-wasting conditions. And our Support hub can show you support and services near you – including specialist teams and NHS Centres of Excellence.
Improving community professionals knowledge
Work ongoing to aid community professionals and commisioners
All Ireland research & information day
News from our information day in Belfast
New Drug Application for eteplirsen
The exon skipping drug could be approved by 2016 in the US
Come and run the Great North Run for us.
You'll want to keep running!