When you have a muscle-wasting condition – or are supporting someone who has – it’s vital to have access to the right information and advice. We’re here to help you get the support and care you need, wherever you live.

Whether you want to know more about a condition or about the practicalities of living with a muscle-wasting conditions, we’re here for you.

We offer a personal support system for people at their point of need, with a specialist helpline and free information. Last year we responded to more than 25,000 requests for help.

We can help you get the equipment, services and financial support you are entitled to. We can put you in touch with someone who knows what it’s like to live with muscle-wasting conditions. And our Support hub can show you support and services near you – including specialist teams and NHS Centres of Excellence.

 

News

  • Kirath Mann

    Latest on NICE assessment of Translarna

    Next steps and how to get involved

    Read more »

  • Charlotte Adkins

    Vital alert cards launching to help prevent emergencies

    New condition-specific cards announced

    Read more »

  • microphone

    Your exon skipping questions

    Please send us your questions via our forum

    Read more »

  • Town and Gown 10k runners

    Be one of 4,000 runners

    Are you set to tackle our Oxford Town and Gown 10k?

    Read more »

Events calendar

  • 22

    Scotland Cross Party Group meeting

    22 April 2015

    Read more »

  • 24

    North West Muscle Group meeting in Blackburn

    24 April 2015

    Read more »

  • 25

    London Bungee Jump

    25 April 2015

    Read more »

Near you

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