When you have a muscle-wasting condition – or are supporting someone who has – it’s vital to have access to the right information and advice. We’re here to help you get the support and care you need, wherever you live.

Whether you want to know more about a condition or about the practicalities of living with a muscle-wasting conditions, we’re here for you.

We offer a personal support system for people at their point of need, with a specialist helpline and free information. Last year we responded to more than 25,000 requests for help.

We can help you get the equipment, services and financial support you are entitled to. We can put you in touch with someone who knows what it’s like to live with muscle-wasting conditions. And our Support hub can show you support and services near you – including specialist teams and NHS Centres of Excellence.



  • Young man at Lane Fox unit with Emily Ballard and Nick Hart

    New specialist neuromuscular roles secured

    Bridging the Gap team help secure vital new roles

    Read more »

  • MDUK-MDI-conference

    All Ireland research & information day

    News from our information day in Belfast

    Read more »

  • Ethnicity and loss of walking ability in Duchenne muscular dystrophy

    OPTIMISTIC trial in DM1 recruitment closes

    250 participants have been enrolled

    Read more »

  • MDUK Jack Wilshere - Sopwell House 260515-120

    Jack Wilshere is our new ambassador

    We are delighted to welcome Jack as our ambassador

    Read more »

Events calendar

  • 29

    Question of Support Dinner & Quiz

    29 May 2015

    Read more »

  • 30

    Edinburgh Marathon Festival – Day One

    30 May 2015

    Read more »

  • 30

    Glasgow Central Station Collection

    30 May 2015

    Read more »

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