Someone to talk to
It was nice to be able to speak to someone who understood what it was like to live with a muscle-wasting condition. Just chatting and listening, I learned I wasn’t on my own and there was support out there.’’
Adrian, who has a muscle-wasting condition
Want to talk to someone who can relate to what you’re feeling? We can put you in touch with someone who, through their own first-hand experience of living with a muscle-wasting condition, can give you support and advice.
Whether you have a muscle-wasting condition, or someone close to you has, we can put you in touch with someone you can talk to.
Health professionals and MDUK work together to improve care
Come along to our group for families from South Asian backgrounds
Mutations in SCN4A may weaken infants' breathing muscles
#TeamOrange take on the London Marathon