Soon after our son’s diagnosis, I met someone from the charity who put me in touch with another family in the same situation. It was really helpful to talk – we didn’t feel alone. Often friends and family just don’t understand.”

Susan, whose son has Duchenne muscular dystrophy

Want to talk to another mum or dad, who understands what you’re going through? We have a number of ways we can put you in touch with other parents. You can:

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