The British Medical Journal has highlighted the care and support required for Duchenne muscular dystrophy and the patient perspective through the experiences of Stefan Spies.
In the article, Stefan Spies talks about a wide range of aspects of his everyday life, including the adjustments that he has to make and the care and support offered.
Dr Frans Nollet provides a doctor’s perspective of Duchenne muscular dystrophy and recommendations of what medical professionals can do to support both the patient and family, focusing on the individual’s needs, not only on a practical level but also in the provision of emotional and mental support.
Many of the issues raised in the article are reflected in the Duchenne standards of care guidelines which were published earlier this year.
For more information about the standards of care for Duchenne muscular dystrophy, please get in touch:
020 7803 4847