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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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In July 2021, we published the 'Shining a Light: the impact of COVID-19 and the future of care for…
News
Spinraza   The first treatment for spinal muscular atrophy (SMA), Spinraza is now available to…
Blog
Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
News
That’s why we’re joining a global alliance on 15 September, International Myotonic Dystrophy…
News
To mark World Duchenne Awareness Day 2021 on Tuesday 7 September, we were joined in our Muscles…
News
In the week of World Duchenne Awareness Day 2021 we are delighted to be able to announce that the…
Publication
It is only through your help that we are able to fund vital research, and offer care and support to…
Blog
I am pleased to announce that the Journal for Neuromuscular Disorders has accepted for publication…
News
Sam, 32, from Brentwood, began volunteering and fundraising for Muscular Dystrophy UK (MDUK) in…
Blog
We heard concerns arising because of the pandemic, such as continued delays to accessing critical…