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  • #175847
    Foot drop

    Hey ya’ll!
    My name is Yago I have FSHD. Recently I got a foot drop, which does not allow me to point my foot up. I went to the doctor and I had and nerve test connection and I discovered that there is a nerve not doing its job. The doctor suggested me a surgery to release pressure off the nerve. The problem, though, is that the doctor does not know if it’s due to the muscular dystrophy or not.
    My question is: Does FSHD affect nerves?

    yagomuniz
    Participant
    Posts: 0
    Joined: 01/03/2019
    #175899
    Reply To: Foot drop

    Hi and welcome to the forum

    Foot drop is very common in MD and is in fact one of the early indicators in children specifically boys with Duchene.

    I was offered tendon release surgery on my left foot that no long can independently rotated or pulled up after an accident. I have declined on personal reasons as it may inhiit my driving and what limited walking I have left. I personally dont do well with recovery and was told would be in cast for 8 to 12 weeks.

    Be sure to discuss what plan is. What physio is available after and before the operation. I do well with physio in form of passive movements to ankle but this cannot be provided to me locally on NHS. But when I have paid for physio with ultra sound therapy it has had a measurable positive outcome to circulation to foot and movement.

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #175901
    Reply To: Foot drop

    FHSD does not affect nerves per se as it is a condition which affects certain muscles. Through its interactions with your body it might be possible that those interactions affect a nerve, but it is equally possible that you have a condition that has done the same, perhaps an old injury.
    But that is pure speculation. Your description suggests that this foot drop happened quite suddenly without any pre knowledge of change, if that is the case then your doctor may well be looking at other causes for your foot problem. My own FHSD has limited the moment in both feet, and in my toes too, as well as having peripheral neuropathy. It is something I accepted might happen and I just need to deal with it. On that basis I would strongly support catatude’s advice to think through any potential surgery very deeply, especially when considering that it may well provide good benefits for you without the need to have an anaesthetic. This latter is very important with those of us who have MD, and you wold need in depth discussions with an anaesthetist about it.

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
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