Viewing 11 posts - 1 through 11 (of 11 total)
  • #164905
    Greetings comrades

    Hi folks, I am new here, not had an official diagnosis yet.

    "If I am the smartest person in the room, then I am in the wrong room"

    blunttrauma blunttrauma
    Participant
    Posts: 0
    Joined: 11/12/2018
    #164909
    Reply To: Greetings comrades

    Hi, welcome to the forum. Feel free to explore the topics and jump onto any topic thread that interests you.
    How long have you been living without a diagnosis?

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Participant
    Posts: 0
    Joined: 30/07/2018
    #164915
    Reply To: Greetings comrades

    Hi Emma,
    Looking back I think I have been having muscle probs. for over a year now.
    Real problems started beginning of Oct. When I had to stop every 200 yds
    when walking. Now I can barely walk.
    Kind regards.

    "If I am the smartest person in the room, then I am in the wrong room"

    blunttrauma blunttrauma
    Participant
    Posts: 0
    Joined: 11/12/2018
    #164928
    Reply To: Greetings comrades

    That must be very frustrating, especially without an official diagnosis. Some of the others on this forum will have similar stories of waiting to get a diagnosis. I hope yours comes quickly.

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Participant
    Posts: 0
    Joined: 30/07/2018
    #164963
    Reply To: Greetings comrades

    Hello and welcome . Have you started the medical process, that is being referred to a specialist for investigation? Have they said how long it will be before you are seen?

    Mike

    SO many love songs, so little love.

    embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #164965
    Reply To: Greetings comrades

    Hi Mike,
    Not been referred to a specialist. Just getting blood tests (CK)
    from my GP surgery. I have now bought a pair of elbow crutches
    which help keep me steady. I live in a third floor flat, which means
    I have to climb 3 flights of stairs if I go out. Not good.

    Cheers, Bill.

    "If I am the smartest person in the room, then I am in the wrong room"

    blunttrauma blunttrauma
    Participant
    Posts: 0
    Joined: 11/12/2018
    #164971
    Reply To: Greetings comrades

    :welcome:

    """""""What doesn't kill you makes you stronger""""""

    catatude
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #165000
    Reply To: Greetings comrades

    I asked in another part of the forum if you were going through the diagnostic process for your condition. It seems that there is a lot going on here. Living in a third floor flat, buying your own crutches and awaiting blood tests. You really should be pressing for a referral as CK levels on their own will not give you a specific diagnosis, although it will help.

    Mike

    SO many love songs, so little love.

    embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #165001
    Reply To: Greetings comrades

    I asked in another part of the forum if you were going through the diagnostic process for your condition. It seems that there is a lot going on here. Living in a third floor flat, buying your own crutches and awaiting blood tests. You really should be pressing for a referral as CK levels on their own will not give you a specific diagnosis, although it will help.

    Mike

    SO many love songs, so little love.

    embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #165016
    Reply To: Greetings comrades

    Hi Mike,
    Since all this started I have been diagnosed with,(here goes)chronic kidney disease, type 2 diabetes, hypothyroidism, pernicious anaemia, auto immune disease and awaiting another diagnosis. Before this started I had schizophrenia, alcoholism (had my last drink 34 yrs. ago today) and generalised anxiety disorder. I don’t have medical notes, I have Encyclopaedia Britannica. I think they are going through the Diagnostic and statistical manual until they find out what is wrong.
    In an emergency the NHS is first rate, if it is not an emergency you would be better seeing a shaman.

    My last CK result was 325 U/L which seems to fit the symptoms.

    Now I have crutches I will at least be able to get to the atm to get money for taxis.
    Sorry for the long post but I feel I had to vent all that.
    Every blessing
    Bill

    "If I am the smartest person in the room, then I am in the wrong room"

    blunttrauma blunttrauma
    Participant
    Posts: 0
    Joined: 11/12/2018
    #165021
    Reply To: Greetings comrades

    Edit 352 CK blood result.

    "If I am the smartest person in the room, then I am in the wrong room"

    blunttrauma blunttrauma
    Participant
    Posts: 0
    Joined: 11/12/2018
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