Viewing 4 posts - 1 through 4 (of 4 total)
  • #126620
    Hello everyone

    After 3 years of falling over and attending various doctors I have recently been diagnosed with IBM. The first let down for me was when my Doctor knew nothing about the disease and just referred me back to the hospital for further treatment! :lol:

    Colin42

    Colin42
    Participant
    Posts: 0
    Joined: 04/04/2016
    #126634
    Reply To: Hello everyone

    It’s not unknown for that to happen.

    Welcome to our forum :waving:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #126649
    Reply To: Hello everyone

    Hi Colin,

    Good to have you on board :)

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #126764
    Reply To: Hello everyone

    Hi Colin,

    Sorry to hear you didn’t have a great time with the doctors! Welcome to the forum.

    If you would like more information about IBM or would like to get in touch with others who have the condition, the Care and Support team at Muscular Dystrophy UK can help :)

    There are lots of ways we can help so please do get in touch. Our helpline number is 08006526352 or you can email us on info@musculardystrophyuk.org

    Of course the community here in the lovely forum can help too!

    Best wishes,
    Maddy
    Care, Information and Advocacy Manager

    Care, Information and Advocacy Manager
    Muscular Dystrophy UK

    Maddy Rees
    Participant
    Posts: 0
    Joined: 25/02/2015
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