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  • #162506
    Help us improve our website

    Hi everyone,

    My name’s Suzannah and I lead the digital team at Muscular Dystrophy UK. It’s great to read all the messages on here and to see how people support one another.

    We’re currently carrying out some user research with people with muscle wasting conditions and their friends and families to find out what’s important to them and how our website, forum and other digital tools can support them.

    We’ve just launched a survey which can be accessed via our website or at the link below:

    The survey should only take 5-10 minutes to complete.

    If you’d be happy to take part in some further research – a 45 minute phone interview – please email:

    Suzannah Brown at

    Thanks for your help. The more people take part in the research the better we’ll be able to provide digital support to help you and your families with your condition.

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Posts: 0
    Joined: 30/07/2018
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