August 23, 2016 at 8:35 am #136700House adaptations
Hello. I’m looking for some help and advice on house adaptions. Our son has DMD and we will need to decide if we put a lift and adapt upstairs or if we go for the ground floor option. We have had rough plans drawn up by the council with OT input. what has worked best for you? Thank you in advanceAugust 23, 2016 at 11:49 am #136714Reply To: House adaptations
What worked best for me was what I could afford. The local council gave me no funding whatsoever. However, I would say to you that if the council have guaranteed the funding you should consider not just what is happening today, but what condition your son will be in a year, five years or even ten years down the line. Then you must plan for that.
It would be helpful if we had some more details, for example his age, condition,severity etc, but aso how he deals with it. Many of us with MD want to do as much as we can for ourselves, does that describe him also. He may also find that if he has his own room upstairs it is somehwere to retret to like any other child. Downstairs he may feel he was being watched all the time.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015August 23, 2016 at 10:20 pm #136786Reply To: House adaptations
Thanks Mike. He’s 10 and is starting to really struggle with the stairs. The council have agreed funding. You’re right that future, The teenage years and beyond are a big consideration. He has two siblings and always wants to be just like them so I wonder if upstairs would be best. I know he will want to be as independent as possible.August 24, 2016 at 12:35 pm #136805Reply To: House adaptations
Please try and think of him as one of your other children.What would they want at that age? Then find the best solution to get him to achieve that, so he can be just like the other kids. If it was me I would like to be upstairs with the others, and I guess the others might like that too so that they can be around him more easily and interact more easily. If a wheelchair is not on the horizon then you may find that a stairlift will do the necessary task of getting him upstairs with the elast amount of disruption to your home. Mine is a godsend for me, and has obviated the need to move. But as I said what is in the plan for his health in five or ten years time.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015August 24, 2016 at 9:39 pm #136818Reply To: House adaptations
Thanks Mike. Those were my thoughts too, good to hear it from someone else. He would need a through the floor lift, we have enough room, it’ll be tight but if it will work best for him I think we could go with that option. It’s trying to plan for the teenage years and beyond that worry me most.
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