Viewing 6 posts - 1 through 6 (of 6 total)
  • #163614
    LGMD Possible Diagnosis

    Hi All,

    I am currently in the process of being diagnosed with possible LGMD. I’m still undergoing tests, muscle biopsies, heart scans etc.

    I was wondering if anyone else has been through this process and can offer support. At the moment, I’m currently struggling with what’s happening.

    So any advice or past experience from anyone would be greatly appreciated.

    Many Thanks
    Bradley

    BradB1993
    Participant
    Posts: 0
    Joined: 15/10/2018
    #163650
    Reply To: LGMD Possible Diagnosis

    Hello and welcome to the forum Bradley. I am sure that we have a number of fellow LGMD people on the forum amd I am sure they will be in contact soon. In the meantime there is a contact group on Facebook you might look into.

    On-line LGMD Support Groups on Facebook:

    Mike

    SO many love songs, so little love.

    embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #164249
    Reply To: LGMD Possible Diagnosis

    Hi Bradley,

    I have LGMD and im a young 45 lol, I remember when i was diagnosed 25 years ago, it really was a bolt out of the blue, I noticed I couldnt run as fast as I use to so went to Dr.

    If you want to have a chat send me PM or reply on forum.

    Regards John

    JohnB
    Participant
    Posts: 0
    Joined: 20/08/2014
    #164263
    Reply To: LGMD Possible Diagnosis

    Hi John,

    Thanks for your reply. Yes I would like to chat to you if you could.

    I’m not sure how to PM you though haha

    Regards
    Bradley

    BradB1993
    Participant
    Posts: 0
    Joined: 15/10/2018
    #164268
    Reply To: LGMD Possible Diagnosis

    hi to John and Bradley

    :welcome:

    The Forums Private Message facility is not working at the minute. :?

    Hope you are both well and look forward to your posts.

    Catatude
    Mod

    """""""What doesn't kill you makes you stronger""""""

    catatude
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #164306
    Reply To: LGMD Possible Diagnosis

    Hi Bradley,

    I am a member of a forum on wheelchairdriver.com My name on there is iceuk, if you register to join website you can send me a pm. I dont really want to write email or mobile number on open forum as im sure some bot will harvest for spamming.

    Regards john

    JohnB
    Participant
    Posts: 0
    Joined: 20/08/2014
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