April 25, 2011 at 7:49 pm #73653My Future with MD
Hello i was just wondering if there is anyone out there with Limb Girdle, Muscualr Dystrophy type 2. I am only 19 and im just worred about what the future holds for me and was wondering if anyone out there had any advice. Thanks xApril 26, 2011 at 11:13 am #80146Re: My Future with MD
Welcome to the forum.
Make sure you check out the “Newly Diagnosed” section
on the main MDC website. It has many free publications
on all aspects of MD, Limb girdle etc.
"Even if you are not paranoid, it does not mean they are not out to get you!".taungfoxParticipantPosts: 4,630Joined: 27/09/2010April 26, 2011 at 11:21 am #80147Re: My Future with MD
I’m 20 and have congenital muscular dystrophy. I too worry about what the future may hold, but I try not to dwell on it too much and remain positive. If you would like to chat at all, feel free to get in touch.catherineParticipantPosts: 24Joined: 08/02/2011May 15, 2011 at 10:49 pm #80149Re: My Future with MD
Hi Lauren, I was also 19 when I was diagnosed with LG Type 2. I’m now 25 and still doing ok, I walk un-aided 99% of the time but use crutches if there are lots of people about or if I am going somewhere with an un-even surface.
If you have any particular questions feel free to ask or drop me a message
Welcome to TalkMD! SagSagarParticipantPosts: 82Joined: 20/12/2010May 16, 2011 at 7:12 pm #80150Re: My Future with MD
Hiya thank you for responding to my post, how does that effect you if you dont mind me askin? and yes it is very hard not to dwell on it xx
No, of course I don’t mind you asking. I am a full time powered wheelchair user and need help with all everyday tasks. I also have severe scoliosis and use a Bipap at night. I’m currently in my second year at university, where I live in halls of residence with my 3 carers (two volunteers, one privately employed with direct payments).
If you have any questions or want to chat, just let me know I’m always happy to help in any way I can!catherineParticipantPosts: 24Joined: 08/02/2011
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