Viewing 8 posts - 1 through 8 (of 8 total)
  • #73653
    My Future with MD

    Hello i was just wondering if there is anyone out there with Limb Girdle, Muscualr Dystrophy type 2. I am only 19 and im just worred about what the future holds for me and was wondering if anyone out there had any advice. Thanks x

    xLaurenx
    Participant
    Posts: 6
    Joined: 25/04/2011
    #80144
    Re: My Future with MD

    Hi Lauren welcome to the forum

    I have Limb Girdle but not sur what type, there are plenty off people on here with LGMD as well as other types and I’m sure they’ll post in the next few days ;)

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #80145
    Re: My Future with MD

    Hello, thank you i hope people post will be nice to talk to people goiing through the same as me xx

    xLaurenx
    Participant
    Posts: 6
    Joined: 25/04/2011
    #80146
    Re: My Future with MD

    Welcome to the forum.

    Make sure you check out the “Newly Diagnosed” section
    on the main MDC website. It has many free publications
    on all aspects of MD, Limb girdle etc.

    http://www.muscular-dystrophy.org/newly_diagnosed

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #80147
    Re: My Future with MD

    Welcome :)

    I’m 20 and have congenital muscular dystrophy. I too worry about what the future may hold, but I try not to dwell on it too much and remain positive. If you would like to chat at all, feel free to get in touch.

    catherine
    Participant
    Posts: 24
    Joined: 08/02/2011
    #80148
    Re: My Future with MD

    Hiya thank you for responding to my post, how does that effect you if you dont mind me askin? and yes it is very hard not to dwell on it xx

    xLaurenx
    Participant
    Posts: 6
    Joined: 25/04/2011
    #80149
    Re: My Future with MD

    Hi Lauren, I was also 19 when I was diagnosed with LG Type 2. I’m now 25 and still doing ok, I walk un-aided 99% of the time but use crutches if there are lots of people about or if I am going somewhere with an un-even surface.

    If you have any particular questions feel free to ask or drop me a message

    Welcome to TalkMD! Sag :)

    Sagar
    Participant
    Posts: 82
    Joined: 20/12/2010
    #80150
    Re: My Future with MD

    @xlaurenx wrote:

    Hiya thank you for responding to my post, how does that effect you if you dont mind me askin? and yes it is very hard not to dwell on it xx

    Hi Lauren!

    No, of course I don’t mind you asking. I am a full time powered wheelchair user and need help with all everyday tasks. I also have severe scoliosis and use a Bipap at night. I’m currently in my second year at university, where I live in halls of residence with my 3 carers (two volunteers, one privately employed with direct payments).

    If you have any questions or want to chat, just let me know :) I’m always happy to help in any way I can!

    catherine
    Participant
    Posts: 24
    Joined: 08/02/2011
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