Viewing 8 posts - 1 through 8 (of 8 total)
  • #138646
    Newbie from London!

    Hi everyone!! My name is Cintia and I’m excited to join the forum. I have limb-girdle muscular dystrophy type 2A and I’m looking forward to talk to you :) :yes:

    cintialiber
    Participant
    Posts: 0
    Joined: 29/09/2016
    #138657
    Reply To: Newbie from London!

    :welcome: :welcome: :new: :new: Pleased to meet you Cintia. I have Congenital Myasthenia Dok7. How are you ? :D

    Chelle
    Participant
    Posts: 0
    Joined: 29/09/2016
    #138659
    Reply To: Newbie from London!

    hi and welcome to the forum. Im from scotland and have CMD fault on the SPN1 gene.

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #138665
    Reply To: Newbie from London!

    Hi Cintia!

    Welcome to TalkMD. I’m in East Sussex and have UCMD.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #138745
    Reply To: Newbie from London!

    Hi, I’m Shevvy and I also have a type of Limb Girdle MD. I am still going through the long,in my case, process of diagnosis. I have been told that it is a rare type.

    I live in Epping, Essex which is the last stop East on the Central Line. I work In Woodford Bridge. Where are you in London?

    Welcome to the forum! It’s a good place for information and to find out if people are facing the same challenges and how they go about dealing with them.

    I look forward to hearing from you. :welcome:

    Shevvy

    shevvyt1
    Participant
    Posts: 0
    Joined: 16/11/2013
    #138862
    Reply To: Newbie from London!

    Hello and welcome. I am Mike with a variant of FHSD living a long way from most places

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #138995
    Reply To: Newbie from London!

    Hi

    I have LGMD2L

    Welcome :)

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #140623
    Reply To: Newbie from London!

    Hi Cintia,

    I have CMT and live just outside Cambridge. I’ve only been using this site a matter of days but am very impressed so far.
    It’s nice to meet you.

    Kind regards
    Jules

    Stormtrooper
    Participant
    Posts: 0
    Joined: 17/06/2016
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