Viewing 20 posts - 1 through 20 (of 67 total)
  • #127154
    PIP here we come :(

    So… this happened

    Finally got my ‘invitation’ to claim PIP which includes a request to phone them with lots of information before the form is sent. I have till 5th May to call. Will do it next week, or the week after sometime and let you all know how the lovely process goes. I was an indefinite DLA award. Ho hum.

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #127207
    Reply To: PIP here we come :(

    Oh Launton, I feel your pain man.

    There’s no way to candy coat this mate, you’ve got to expect a kick in the plums & you might only get a poke in the eye. That’s the best way I can prep you for it because they don’t make it easy. Being on a lifetime award, as I was, means nothing. As far as they’re concerned, it’s a new claim & you’re starting over.

    If nothing else I wish that it’s expedient because we’re into our fourteenth month with a rescheduled court date for next month. I’ve been told to keep my big mouth shut & not say more about it.

    My Wife & I wish you all the very best of luck :yes: .

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #127233
    Reply To: PIP here we come :(

    Have a look through this thread PIP In the news there is mention of some pre=applying advice and tips MD can send you :yes:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #127238
    Reply To: PIP here we come :(

    Thanks for the support everyone, I’ll look at those links and see what’s what.

    I do have some excellent support documents:

    A letter from my previous employer outlining the progression of my disease to the point where the job was impossible
    A letter from my consultant/surgeon/neurologist explaining my disease and how it affects me personally
    A letter from two professors of genetics in Newcastle who helped (with my dna) find the faulty gene (an05) and diagnose me and others with LGMD2L from 2010
    A letter from my partner explaining how the disease affects me and a few other things. I think these helped the DM award (god that word) me ESA without a face to face assessment.

    The main thing I hate about this disease is it’s invisibility.

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #127239
    Reply To: PIP here we come :(

    I’ve found throwing yourself into the lap of the assessor & protesting me legs gave way worked with ESA, less so with the PIP assessment. The miserable b :wave: s!

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #127247
    Reply To: PIP here we come :(

    Thanks you’ve cheered me up no end :) :lol: :lol: :lol:

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #127248
    Reply To: PIP here we come :(

    Hi Launton,
    Our Advocacy Team at Muscular Dystrophy UK would be happy to write a letter of support explaining your condition to go along with your PIP application. Please phone us on: 0800 652 6352 if you want to have a chat about it.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #127251
    Reply To: PIP here we come :(

    Thank you Emilie I’ll certainly give you a call early next week.

    Regards

    John

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #127304
    Reply To: PIP here we come :(

    This is for Launton & for anybody else being invited to transfer over to PIP but, you didn’t get this from me, right ;) .

    If you’re on a DLA indefinite award & you’re offered a fixed period award for PIP, you have the right to challenge it & request it be amended to an indefinite should it be deemed ‘inappropriate’.

    In fixing the duration of a fixed term award, relevant considerations will include the likely persistence of an individual’s limiting condition/conditions. The rigid categories for the duration of fixed term awards are not compatible with the purpose of the 2012 Act (http://www.legislation.gov.uk/ukpga/2012/5/section/88/enacted) should your daily living & mobility problems be unlikely to diminish.

    I advise you download, print & include the case file from here as a reference in any appeal http://www.osscsc.gov.uk/Aspx/view.aspx?id=4789.

    Hopefully my study of welfare rules, welfare reform & EU social security coordination rules for the past fourteen months can be of some value to my fellow wobblies here :yes: .

    PS F.A.O the web page people, it would be incredibly helpful to be able to PM people again. I’d rather be able to assist some of my friends here in private so not to draw attention to myself, especially with regard sensitive issues regarding legal matters. I don’t wish to incriminate myself or them. If you can’t do that soon, is there any scope to please change my user name until further notice please? Don’t worry, worked it out :LOL: . Thank you.

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #127347
    Reply To: PIP here we come :(

    PS F.A.O the web page people, it would be incredibly helpful to be able to PM people again. I’d rather be able to assist some of my friends here in private so not to draw attention to myself, especially with regard sensitive issues regarding legal matters. I don’t wish to incriminate myself or them. If you can’t do that soon, is there any scope to please change my user name until further notice please? Don’t worry, worked it out :LOL: . Thank you.

    *fingers-crossed* the PM’s should be up ‘soon’ (not sure if that is this month or next :scratch: )

    :halogreen: shhh, you could always create a second user account with a superhero type name :halogreen:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #127352
    Reply To: PIP here we come :(

    shhh, you could always create a second user account with a superhero type name

    Done & done :LOL:

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #127385
    Reply To: PIP here we come :(

    We’re also unable to edit or delete our previous replies? Perhaps a mod or admin can edit one of my previous posts further up to remove a name?

    Thanks Wonder Woman I’ll print off all that and have a read. I’m very grateful for people including information in this thread and hopefully it will help others as it grows.

    I know this will sound ridiculous but does anyone else feel almost embarrassed to claim what in real terms we are entitled to? It’s such a sad effect of the bad media coverage, it’s making me feel sick, but at the same time I intend to fight this all the way seeing as the politicians claim thousands of pounds of taxpayers money for garden gnomes and whatever. If my benefits are cut I’m not sure how I will survive, doesn’t bear thinking about. What world are we living in when our own Government vilify disabled people

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #127386
    Reply To: PIP here we come :(

    I know exactly what you mean Launton. I can assure you, you shouldn’t have to feel guilty but, know why you do.

    You naturally feel like that because you’re a decent person being forced to fight for what you are quite rightly entitled to. It’s called social security. I used to work before I knew what my problem was & wasn’t diagnosed til I was 27 & I carried on working for nearly 4 years after that. Whilst working you pay taxes for a number of reasons, one of which is to support others less fortunate than yourself.

    I didn’t expect that one day I would be one of the people that would, not benefit from but, need that same safety net & come to rely on it.

    The problem in the year 2016 is not the fact you have to rely on social security, the problem is you have to fight for it. It’s part of the endemic reality living under a tory government.

    So, don’t you ever feel bad. I know you will, I do but, it’s not our fault. It’s the system & the government manipulating the media. As I’ve said many times, these people are so far removed from the rest of us they wouldn’t know poverty & struggle if it hit them in the face & boy would I like to try.

    Now I’m off to fight a crime with me flying tiara https://www.youtube.com/watch?v=qahSU4RYblY

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #127387
    Reply To: PIP here we come :(

    We’re also unable to edit or delete our previous replies? Perhaps a mod or admin can edit one of my previous posts further up to remove a name?

    You should be able to edit your posts up to 24hours from posting. I’ve removed the name from your previous post :yes:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #127388
    Reply To: PIP here we come :(

    Thank you! :)

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #127390
    Reply To: PIP here we come :(

    I can still see a name. Maybe it was a different one Launton wanted removed but, in post no.8 there’s still a name. Is that the one?

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #127456
    Reply To: PIP here we come :(

    I can still see a name. Maybe it was a different one Launton wanted removed but, in post no.8 there’s still a name. Is that the one?

    I didn’t mean Emilie if that’s who you are referring to WW

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #128080
    Reply To: PIP here we come :(

    Just had a warning letter reminding me I’d lose my DLA if I didn’t call them before the 5th May, so I called the DWP to begin the process… Will update you all as it goes. The girl was nice enough, and I had all the info she wanted to hand. Still makes your :stars: with all the ramblings they have to spew out.

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #128083
    Reply To: PIP here we come :(

    Big day for us both then. we’re in court that day. I’m bricking it to be honest.

    I’ve crossed me legs, sticks, even crossed me eyes for ya Launton :shock: . All the best pal :yes: .

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #128084
    Reply To: PIP here we come :(

    Thanks Wonder Woman and don’t you brick it. You’re far more capable than you think and a lot of us look up to you for advice I’m sure. Will be thinking of you and sending good vibes on the day mate. We all will.

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
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