Forum Replies Created
June 30, 2013 at 9:56 pm #78121Re: Heart Condition
Iv just been prescribed bisoprolol on top of my ramipril for the same reason. I haven’t experienced any dizzy spells yet but am experiencing bad tummy problems – pain and lots of dashes to the toilet….
I’m going to check with my doctor to see if there is an alternative to bisoprolol as its also effecting my appetite – or lack of!August 26, 2012 at 1:46 pm #86338Re: Friend With Muscular Dystrophy.
All i can really do is echo the views of other members.
I too took diagnosis badly, not wanting to go out, and adopting the “whats the point attitude”.
Eventually i decided to ge out there, take part in simple hobbies like fishing, and evntually joined my local powerchair football team.
I know it may sound corny, but realising there are people out there that are worse off helped kick my arse. I was diagnosed late on in my early 20’s, so i had the oppportunity to play sports at school. Seeing these little kids that wont get that opportunity yet stil smile and carry on bought it home to me.
Also going to a local md group meeting also helped to share experiences etc.
Good luck and hope it goes well.February 19, 2012 at 7:50 pm #83446Re: problems with stomach area
I too am experiencing stomach issues – bloating, toilet dashes, no appetite etc.
Blood tests booked for thursday, waiting for colonoscopy appt within next 7 days. Doc was telling me there is a big nhs campaign to test for bowel cancer and they’ve been told to test as many people as possible.
Dont get m wrong, i really dont like to “self diagnose”, but from reading posts in the forum it looks like a muscular connection.September 18, 2011 at 6:32 pm #78880Re: Powerchair
Brace yourselves – i now have my powerchair!
Long battle, and as you’d expect, like rollerskating uphill!
In the end the funding was split between £1000 from local wheelchair services, £4,600 from access to work, and the remainder paid by myself.
So if anyone out there is struggling involved access to work if you can do.
Access to Work are contacted via your local jobcentre. Basically each jobcentre has one of these advisers to help disabled persons to get back or continue to work.
If you need any info let me know and i’ll always try to help.May 23, 2011 at 3:12 pm #78876Re: Powerchair
After a new assessment wheelchair services have identified that i need an indoor/outdoor powerchair with aa electronic riser and agree with the chair Gerald Simmonds have recommended.
Therefore, Wheelchair Services can offer me a £1,000 voucher towards an indoor only, non-rising powerchair. They admit that even though the non-rising chair is no good, that is all they can offer.
Too angry to type anything else at the moment.April 12, 2011 at 3:58 pm #79971Re: Muscle tingles
yes taungfox, they are very similar.
i started getting them in my legs before the onset of the MD and have always associated it as an “early warning” of weakness to appear in that muscle. the tingles have spread to arms and hands and subsequent weakness.
i was wondering if i am imagining it or if this has happened to anyone else?April 11, 2011 at 10:59 pm #78872Re: Powerchair
Just an update….
I went to a dealer called Gerald Simmonds in aylesbury to try chairs and found the Quickie Salsa ticks all the boxes – but its £7k!
The rep did suggest i speak to wheelchair services again, which i have done, assessment appointment booked for 2nd May – fingers crossed….December 23, 2010 at 10:23 pm #77694Re: Gadgets and Stuff to make lift easier
Its a small red rubber bar that fits into the door loop and helps me getting out of my car. Its hard to explain so i’ve copied some details below.
The HANDYBAR CAR AID is a highly engineered simple device with a non slip solid support handle for extra comfort and a super strong forged steel shaft.
The HANDYBAR CAR AID fits the majority of vehicles with the standard U shaped striker plate on the car door frame and there is a U shaped striker plate on each of the driver and passenger doors.
The U shaped striker plate is one of the strongest parts of the vehicle and is designed to keep the vehicle door closed in the event of a side impact collision, so is the ideal point to create a safe and secure attachment for the AUTO HANDYBAR.
The AUTO HANDYBAR also incorporates an invaluable Seat Belt Cutter and Glass Breaker to help leave a vehicle quickly and easily in the event of an accident or emergency.