41 yr old with Ullrich Congenital MD (Collagen VI deficiency). I live in Sussex, in an adapted bungalow with 24hr care package (PAs). I am a vent user night and day. As well my mod duties here I volunteer for my local Citizens Advice.
Forum Role: Moderator
Topics Started: 117
Replies Created: 2694
Registration Date: 05/03/2015
© 2015 Muscular Dystrophy UK Registered Charity No. 205395 Scottish Registered Charity No. SC039445