Forum Replies Created
September 4, 2015 at 4:58 pm #96855Re: Exercise
I can understand your dilemma. I think quite a few of us here have wondered the same thing: do we exercise to keep the muscle strength we have or is exercising not beneficial when we’re already weak and tired out?
My own experience is all I can tell you about. I have had a little exercise regime for 40 years. That is, from the time I was diagnosed until now. The exercises have changed over the years according to my ability and now I do very little compared to what I did to start with, but these days I am entirely wheelchair-dependent and my back is weak. I have had input from physiotherapists at various times and there have been times when I’ve had to push myself to do my exercises but I’ve always had that nagging thought at the back of my mind that if I stop then I’ll regret it.
I think only you can decide what’s best for you. My advice would be to ask a professional for their opinion [GP, consultant, physiotherapist for example] especially as you say it is tiring for you just to get through a normal day’s activities. You don’t want to wear yourself out any more than you already are by lifting weights if ultimately, that might not help with your condition. Maybe there are specific exercises you can do that won’t tire you but will maintain strength and/or flexibility, but only a physiotherapist can help here.
SybyllaSeptember 4, 2015 at 4:43 pm #96859Re: Motability Scheme
I’m glad the Motability scheme is working out for you and thanks very much for posting your message so that others may see how it works. I know it’s useful for lots of people who want to have a car without the hassle of looking after it, whilst for others the idea of a new car every three years is very appealing!
SybyllaJuly 28, 2015 at 1:51 pm #89289Re: What was the last good film you watched?
Yes, I agree – “Rush” is a brilliant film.
The last film I saw was on television: “Bertie and Elizabeth”. About George VI and Queen Elizabeth. I watched it because James Wilby played George VI and I’m rather partial to him! It was a pretty good film.
SybJuly 28, 2015 at 1:48 pm #87488Re: What did you do today?
Good luck, Mr. Fox, with your three appointments. I hope all goes well for you. Have a good rest afterwards!
And good luck to you too, AnnMarie. If t’internet packs up, we know why!
I will soon be heading off to beddie for a lie down to rest my aching joints…..
SybJune 30, 2015 at 3:29 pm #96667Re: Driving with foot drop
Have you considered having a left foot brake? I have an automatic and many years ago started to have trouble moving my right foot from the accelerator to the brake. My left foot works fine so I asked a local mobility company to move the brake pedal so I could operate it with my left foot. I was then able to drive the car using both feet, with my left foot hovering over the brake pedal. If you had something to rest your foot on until you need to brake, that could be the answer for you.
SybyllaJune 28, 2015 at 3:14 pm #96655Re: Independent Living with LGMD
I agree with AMG – silk sheets [or man-made polyester sheets] are really helpful. I was finding I kept getting stuck to the bed with cotton sheets, but with the slippery ones, it’s easier to move. As for blankets – I would say try a lightweight duvet with a sheet instead. I also have a little fleece blanket rolled up and inserted right at the end of my bed to lift the duvet off my feet so I can move my feet easily.
If bathing is becoming difficult, would a shower help instead? You could sit on a seat and let the shower do the work to save your arms a bit of effort.
Transferring from one chair to another – a banana board [slidey board] is sometimes useful.
Have you been in touch with any occupational therapists or medical advisers who might be able to offer help regarding adaptions for your new home?
Have a look at other topics on the forum as there are many threads on different products that might be of use.