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Having been diagnosed with limb girdle muscular dystrophy 25 years ago, I am used to managing my…
Your story
The 8 in 8 challenge
This whole challenge stemmed from me being rubbish at golf. Gary and Paul’s…
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Patients have been informed that the current lead consultant will be leaving at the end of March…
Your story
I contacted the helpline a couple of years ago, before I worked here, about my housing situation. I…
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I grew up seeing the affect muscular dystrophy had on my grandma and my whole family as she…
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The ceremony hosted by our President, Gabby Logan MBE, took place on Monday 19 February, at the…
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All through life I struggled with everyday things and couldn’t understand why. I couldn’t do sit…
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A career in science and muscular dystrophy
I’ve always had a brain for science as opposed to…
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Today the BBC have highlighted that just after announcing the Disability Action Plan, the…
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We are supporting this process as one of two ‘Patient Experts’, and our Director of Care, Campaigns…