We are a national network of 700 young disabled people, aged 16 – 35, and their supporters and are part of Muscular Dystrophy UK.
We campaign for change, provide guidance, and are experts in what life is like for young disabled people. We are passionately committed to challenging the barriers in society that stop us from living full and independent lives.
I joined because I want to meet new people, especially people my age who also have muscle-wasting conditions; to be at the forefront of protecting the rights of young disabled people; to make policy-makers at local, regional, and national level acknowledge us and invest money into Muscular Dystrophy UK’s research programme; and to create and experience exciting projects for Trailblazers.
Sulaiman Khan, Regional Ambassador for London
Our research in ultra-rare conditions
NICE update on access to Spinraza during COVID-19 crisis
Guidance on risks from coronavirus
MDUK to benefit from major On Farm event