We know that talking to people with similar experiences is powerful. Our support groups are safe and welcoming places to talk to others affected by muscle wasting and weakening conditions, share experiences and meet people who understand what you’re going through. Whether you’re looking to find support in-person, or online, we’ve got a support group for you.
Join one of our WhatsApp groups and meet new people, share experiences, and get advice in a friendly and supportive environment.
The groups are monitored by our staff and volunteers who are also available to provide support, information, and advice. To join our WhatsApp groups and help keep them a welcoming space for all, read and follow the WhatsApp groups joining criteria, rules and safeguarding.
If you’re living with a muscle wasting or weakening condition in the UK, our WhatsApp support groups connect you with others who share similar experiences.
Open to women aged 30+ living with a muscle wasting or weakening condition in the UK, to share experiences, get advice and support other women.
Groups for adults living with Becker muscular dystrophy, Charcot-Marie-Tooth disease, Duchenne muscular dystrophy, Facioscapulohumeral muscular dystrophy, limb-girdle muscular dystrophy, oculopharyngeal muscular dystrophy and Ullrich congenital muscular dystrophy in the UK.
Mae grŵp cefnogi Cymraeg MDUK ar gyfer unigolion, a’u teuluoedd, sy’n byw gyda chyflyrau sy’n nychu cyhyrau neu sy’n gwanhau ac sy’n siarad Cymraeg.
MDUK’s Welsh language support group is for individuals, and their families, who are living with muscle wasting or weakening conditions and who speak Welsh.
The South Asian Neuromuscular Community Support Group connects members of the South Asian community, who are affected by muscle wasting conditions.
For parents of children with muscle wasting conditions. This is a safe space where you can share experiences, offer advice, and find comfort in knowing you’re not alone on this journey. Whether you’re looking for practical tips, emotional support, or just a place to vent.
For parents living with a neuromuscular condition. This is a safe space where you can ask questions, share experiences, offer advice and find comfort knowing you are not alone on this journey. Whether you’re looking for practical tips, emotional support, or just a place to vent.
Connect with other people who understand what you are going through. Our peer support groups are informal, facilitated spaces to connect, share experiences and feel supporter by other people.
We run regular online groups for adults living with a muscle wasting condition, and parents and carers of children and young people.
Are you a parent, grandparent, or carer of someone with a muscle-wasting or weakening condition?
Join our private Facebook groups for a supportive and safe environment where you can ask questions, connect with other families and carers, and support each other.
Find information on conditions, bereavement, mental health and more.
Practical and financial support available to help you with the costs of living with a muscle wasting or weakening condition.
