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DMD Care UK webinar for patients and families about vamorolone
March 21, 2025
Read DMD Care UK webinar for patients and families about vamorolone
Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions?
March 20, 2025
Read Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions?
Celebrating our role in the Changing Places Toilet campaign
March 19, 2025
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President’s Awards celebrate outstanding achievements
March 18, 2025
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Building momentum on our campaigning efforts in Scotland
March 11, 2025
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Researchers develop a new approach for muscle gene therapies
March 7, 2025
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Upskilling care advisors to ensure people living with muscle wasting and weakening conditions get the best care
March 4, 2025
Read Upskilling care advisors to ensure people living with muscle wasting and weakening conditions get the best care
We’re calling on UK governments to re-commit to the Rare Diseases Framework
February 28, 2025
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Givinostat – why is accessing new treatments so difficult?
February 25, 2025
Read Givinostat – why is accessing new treatments so difficult?
Appeal against NICE’s recommendation that efgartigimod should not be recommended for NHS use
February 20, 2025
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NICE does not recommend NHS use of efgartigimod for treating generalised myasthenia gravis
January 24, 2025
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New drug for Duchenne muscular dystrophy to be made available in Scotland
January 13, 2025
Read New drug for Duchenne muscular dystrophy to be made available in Scotland

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