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Lifechanging grants for children – our new partnership with Whizz Kidz
March 25, 2025

DMD Care UK webinar for patients and families about vamorolone
March 21, 2025

Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions?
March 20, 2025

Celebrating our role in the Changing Places Toilet campaign
March 19, 2025

President’s Awards celebrate outstanding achievements
March 18, 2025

Building momentum on our campaigning efforts in Scotland
March 11, 2025

Researchers develop a new approach for muscle gene therapies
March 7, 2025

Upskilling care advisors to ensure people living with muscle wasting and weakening conditions get the best care
March 4, 2025

We’re calling on UK governments to re-commit to the Rare Diseases Framework
February 28, 2025

Givinostat – why is accessing new treatments so difficult?
February 25, 2025

Appeal against NICE’s recommendation that efgartigimod should not be recommended for NHS use
February 20, 2025

NICE does not recommend NHS use of efgartigimod for treating generalised myasthenia gravis
January 24, 2025