Skip to content
ALL NEWS
Filter by type
What do the Work and Pensions Secretary’s priorities tell us about the new UK Government’s plans for supporting people into work?
July 15, 2024
Read What do the Work and Pensions Secretary’s priorities tell us about the new UK Government’s plans for supporting people into work?
What do the Secretary of State for Health’s priorities tell us about the new UK Government’s plans for health and social care?
July 11, 2024
Read What do the Secretary of State for Health’s priorities tell us about the new UK Government’s plans for health and social care?
UK sites announced for myotonic dystrophy type 1 clinical trial
July 5, 2024
Read UK sites announced for myotonic dystrophy type 1 clinical trial
NICE publishes draft guidance on zilucoplan for myasthenia gravis treatment
July 4, 2024
Read NICE publishes draft guidance on zilucoplan for myasthenia gravis treatment
European Medicine Agency’s Committee for Medicinal Products for Human Use Issues Negative Opinion on Translarna Following European Commission Request for Review
July 1, 2024
Read European Medicine Agency’s Committee for Medicinal Products for Human Use Issues Negative Opinion on Translarna Following European Commission Request for Review
FDA expand approval for Sarepta Therapeutic gene therapy Elevidys
June 21, 2024
Read FDA expand approval for Sarepta Therapeutic gene therapy Elevidys
Pfizer gene therapy fails to meet primary and secondary objectives in Phase 3 clinical trial
June 18, 2024
Read Pfizer gene therapy fails to meet primary and secondary objectives in Phase 3 clinical trial
Seven women in MDUK T-Shirts at the MDUK garden at Chelsea Flower Show
Volunteers’ Week – celebrating our volunteers
June 3, 2024
Read Volunteers’ Week – celebrating our volunteers
Preliminary results of the RACER53 Phase 3 study for boys with Duchenne muscular dystrophy
May 28, 2024
Read Preliminary results of the RACER53 Phase 3 study for boys with Duchenne muscular dystrophy
A tranquil garden showing a path with wildflowers at the border with whimsical trees overhanging. A small structure is situated at the end.
‘Best in Show’ garden relocating to Glasgow after RHS Chelsea Flower Show
May 22, 2024
Read ‘Best in Show’ garden relocating to Glasgow after RHS Chelsea Flower Show
We’re calling for better understanding of neuromuscular conditions to speed up referral and improve vital support
May 22, 2024
Read We’re calling for better understanding of neuromuscular conditions to speed up referral and improve vital support
A man and women talk in a sea of other people.
Raising awareness of muscle wasting conditions amongst health professionals
May 22, 2024
Read Raising awareness of muscle wasting conditions amongst health professionals

Stay connected with our community

Get the latest news, inspiring stories, upcoming events, and valuable support services delivered straight to your inbox.