NEWS and UPDATES

Lifechanging grants for children – our new partnership with Whizz Kidz

DMD Care UK webinar for patients and families about vamorolone

Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions?

Celebrating our role in the Changing Places Toilet campaign

President’s Awards celebrate outstanding achievements

Building momentum on our campaigning efforts in Scotland

Researchers develop a new approach for muscle gene therapies

Upskilling care advisors to ensure people living with muscle wasting and weakening conditions get the best care

We’re calling on UK governments to re-commit to the Rare Diseases Framework

Givinostat – why is accessing new treatments so difficult?

Appeal against NICE’s recommendation that efgartigimod should not be recommended for NHS use

NICE does not recommend NHS use of efgartigimod for treating generalised myasthenia gravis