Skip to content
ALL NEWS
Filter by type
‘Checking your chest if you’re disabled’: new health information in collaboration with CoppaFeel!
October 27, 2026
Read ‘Checking your chest if you’re disabled’: new health information in collaboration with CoppaFeel!
Driving Independence: What the Motability Scheme means to our community
October 27, 2026
Read Driving Independence: What the Motability Scheme means to our community
One year on since the launch of our new strategy
October 26, 2026
Read One year on since the launch of our new strategy
Welsh Government to expand newborn screening in Wales: What this means for SMA
October 23, 2026
Read Welsh Government to expand newborn screening in Wales: What this means for SMA
Calling for urgent action to fix NHS continuing healthcare funding
October 20, 2026
Read Calling for urgent action to fix NHS continuing healthcare funding
The Microscope Ball 2026 raises record amount
October 9, 2026
Read The Microscope Ball 2026 raises record amount
Call for MLAs to support newborn screening for SMA in Northern Ireland
October 9, 2026
Read Call for MLAs to support newborn screening for SMA in Northern Ireland
Orange background with white text that reads 'Treatment update'
Apitegromab, a treatment for SMA, will not be submitted for approval in the UK
October 7, 2026
Read Apitegromab, a treatment for SMA, will not be submitted for approval in the UK
Thousands complete Bidwells Cambridge 10k raising £175k
October 5, 2026
Read Thousands complete Bidwells Cambridge 10k raising £175k
Nominations open for our Stronger Together Awards 2027
October 1, 2026
Read Nominations open for our Stronger Together Awards 2027
SMA screening starts in England, but babies in Wales and Northern Ireland left behind
October 1, 2026
Read SMA screening starts in England, but babies in Wales and Northern Ireland left behind
SMA newborn screening update: Our evidence to the Northern Ireland Assembly Health Committee
September 11, 2026
Read SMA newborn screening update: Our evidence to the Northern Ireland Assembly Health Committee

Stay connected with our community

Get the latest news, inspiring stories, upcoming events, and valuable support services delivered straight to your inbox.