Skip to content

Speak to us

Call us on 0800 652 6352 Monday to Thursday 10am to 2pm. If you call outside our helpline’s opening hours, please leave a message and we’ll aim to get back to you within five working days. 

You can also email us

Our support services

Connect with peers in the muscle wasting community at our webinars and information days, or join one of our support groups. Including virtual therapeutic sessions and local meetings. Reach out today. Our life-changing support is here for you.

Just diagnosed?

There is a range of information and support for people who have recently been diagnosed with a muscle wasting condition.

Speak to someone who knows exactly what you’re going through
Call our helpline
0800 652 6352
Our support services

Webinars, information days, support groups. Virtual therapeutic sessions and local meetings. Reach out today. Our life-changing support is here for you.

A woman is knelt down with her son in a park. They are both wearing winter coats.


Advice for living with or caring for someone with a muscle wasting condition.

Financial support

Practical and financial support available to help you with the costs of living with a muscle wasting or weakening condition.

Read more
Housing, adaptations and equipment

Support and information on finding housing, adapting your home and financial support for equipment.

Read more
Everyday life

Live your everyday life to the full. Our information on transport, education, insurance and support with work.

Read more
Managing your condition

Guidance on managing neuromuscular conditions: Exercise, fatigue management, postural care, and mental health. Information on diagnostic procedures, surgeries, and navigating your local neuromuscular care.

Read more
For parents and carers

Information and support for parents, caregivers and families of people with muscle wasting conditions can be found here.

Read more
Bereavement, Grief and Loss

We are here to support families through bereavement, grief and loss. Talk directly to a grief counsellor for free via online chat.

Read more

Stay connected with our community

Get the latest news, inspiring stories, upcoming events, and valuable support services delivered straight to your inbox.