Call us on 0800 652 6352 Monday to Thursday 10am to 2pm. If you call outside our helpline’s opening hours, please leave a message and we’ll aim to get back to you within five working days.
You can also email us info@musculardystrophyuk.org.
Speak to someone who knows exactly what you’re going through
Call our helpline
0800 652 6352
Our support services
Webinars, information days, support groups. Virtual therapeutic sessions and local meetings. Reach out today. Our life-changing support is here for you.
Everyday life
Live your everyday life to the full. Our information on transport, education, insurance and support with work.
Managing your condition
Guidance on managing neuromuscular conditions: Exercise, fatigue management, postural care, and mental health. Information on diagnostic procedures, surgeries, and navigating your local neuromuscular care.
For parents and carers
Information and support for parents, caregivers and families of people with muscle wasting conditions can be found here.
Bereavement, Grief and Loss
We are here to support families through bereavement, grief and loss. Talk directly to a grief counsellor for free via online chat.