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Information for living with a muscle wasting condition

Advice for living with or caring for someone with a muscle wasting condition. You can browse our information by topic. Financial support. Housing, adaptations and equipment. Everyday life. Managing your condition. Bereavement, grief and loss.

Financial support

Practical and financial support available to help you with the costs of living with a muscle wasting or weakening condition.

Housing, adaptations and equipment

Support and information on finding housing, adapting your home and financial support for equipment.

Everyday life

Live your everyday life to the full. Our information on transport, education, insurance and support with work.

Managing your condition

Guidance on managing neuromuscular conditions: Exercise, fatigue management, postural care, and mental health. Information on diagnostic procedures, surgeries, and navigating your local neuromuscular care.

Bereavement, grief and loss

We are here to support families through bereavement, grief and loss. Talk directly to a grief counsellor for free via online chat.

For parents and carers

Information and support for parents, caregivers and families of people with muscle wasting conditions.

Just diagnosed

Being diagnosed with a muscle wasting or weakening condition can be stressful and lonely. We have information and support for you.

Speak to us

If you cant find what you are looking for or have any questions we are here to help. Speak to us. Our helpline is open Monday-Thursday 10am-2pm.