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Media Centre

pressoffice@musculardystrophyuk.org 020 7803 2864

For over 60 years, we’ve been building our community of people living with muscle wasting or weakening conditions, their families and carers, scientists, health professionals, supporters, volunteers, and donors. Together, we’ve made advancements that would have been unthinkable ten years ago.  

There are over 60 muscle wasting and weakening conditions affecting people across the UK. We’re here to provide expert comment on them and share information about our vital work across all four nations (England, Northern Ireland, Scotland and Wales) – from our research, care and support to policy and campaigns, fundraising, events and more.  

We can also put you in touch with people from our community – because nothing is more powerful than real-life stories and experiences. 

Contact our media team

pressoffice@musculardystrophyuk.org 020 7803 2864

Key spokespeople

Our spokespeople are available for interview or to provide comment on a range of subjects including our campaign work, research into muscle wasting and weakening conditions, emerging treatments and issues affecting people with muscular dystrophy. 

Andy Fletcher
Chief Executive Officer

Andy can talk about our operational and strategic plans covering all areas of fundraising, marketing, research, support, policy and campaigns, along with our culture, people and impact. Andy is available for comment on a wide range of issues within the muscle wasting and weakening community including access to treatments and accessibility issues.

Dr Kate Adcock
Director of Research and Innovation

Kate is available to discuss and comment on research into muscle wasting and weakening conditions and related neuromuscular conditions, as well as emerging treatments.

Neeru Naik
Director of Services and Support

Neeru can speak about the support and information we offer including our free helpline information days, peer to peer support, muscle groups, financial support, and online support including seminars and virtual therapy groups across the UK. Neeru can comment on issues including accessibility, benefits, care, education, employment (access to work), equipment availability, housing and housing adaptions.

Regional spokespeople

If you’re looking for a more regional focus, we have expert spokespeople available in England, Wales, Scotland and Northern Ireland to comment on a wide range of topics. 

Looking for a real-life story to help bring news to life? We can organise interviews with people living with a muscle wasting and weakening condition, their families and carers across the UK. 

Contact our media team

pressoffice@musculardystrophyuk.org 020 7803 2864