Sign our petition for a benefits system that supports everyone living with a muscle wasting condition

2 June 2026

We know that too many people living with a muscle wasting condition struggle with the current Personal Independence Payment (PIP) and Adult Disability Payment (ADP) benefits system.

This is wrong. People deserve better. You deserve better. We all deserve a system that understands our needs and is easy to navigate.   

In 2024, over half of people living with a muscle wasting condition felt financially insecure. And we know that disabled people face higher costs. PIP and ADP should be helping, but all too often they fall short.

Now is the time to change this.

The UK and Scottish governments are currently looking at reforming PIP and ADP.  Together, we must urgently demand a benefits system across the UK that recognises all the needs of the muscle wasting community, and people’s right to live independently and with dignity.  

The longer these changes take, the more people will be left to struggle with a system that simply doesn’t understand their condition.

Change is possible. And it starts with us acting today.  

If you believe that decision makers can and should build a fairer system that offers security and understanding instead of uncertainty and fear, sign the petition for a benefits system that truly supports everyone living with a muscle wasting condition.