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Navigating life’s journey

From transport to education, insurance, dreams, wishes and support with work. Our information is here for you.

Transport

You may be able to get help with travel and transport costs. This includes things like discounted travel and support with parking through the Blue Badge scheme. Find out what support is available and how to apply.

Education

Children and young people with a muscle wasting or weakening condition have the right to an inclusive education that meets their needs.

Support for your care needs

If you or someone you care for has a muscle wasting condition, you may be able to get support with everyday care needs. Find out how to ask for a care needs assessment or carer’s assessment, what kind of support may be available from your local council or the NHS, and how to prepare.

Holidays

Going on holiday is a great way to relax, see new places, and spend time with family and friends. Planning ahead can make your trip easier and more comfortable.

Insurance information

Insurance is a financial product sold by insurance companies. It protects you from the financial loss caused by an unexpected eventFor people with muscle wasting and weakening conditions, finding certain kinds of insurance may be harder as insurers may see you as more likely to make a claim. 

Dreams and wishes

A ‘wish’ or ‘dream’ offers children, young people, and adults living with a disability or life-limiting condition the chance to do something extraordinary. Like a special trip or meeting one of your heroes. Some charities in the UK can help make these dreams come true.

Support with work

Whether you’re in work, or looking for work, here are some schemes to support you to find work or stay in work. We also have have information to help you if you feel you are being discriminated against at work.

We’re here to support you

Our support services

Webinars, Information Days, and support groups for our muscle wasting community. Our life-changing support is here for you.

Call our helpline
Information

Advice for living with or caring for someone with a muscle wasting condition.

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How our information is produced

We’re committed to providing accurate information for everyone affected by muscle wasting and weakening conditions. We’re a member of the Patient Information Forum (PIF) and proud to have been awarded the PIF TICK in 2024.