Navigating life’s journey

You may be able to get help with travel and transport costs. This includes things like discounted travel and support with parking through the Blue Badge scheme. Find out what support is available and how to apply.

Children and young people with a muscle wasting or weakening condition have the right to an inclusive education that meets their needs.

If you or someone you care for has a muscle wasting condition, you may be able to get support with everyday care needs. Find out how to ask for a care needs assessment or carer’s assessment, what kind of support may be available from your local council or the NHS, and how to prepare.

Going on holiday is a great way to relax, see new places, and spend time with family and friends. Planning ahead can make your trip easier and more comfortable.

Insurance is a financial product sold by insurance companies. It protects you from the financial loss caused by an unexpected event. For people with muscle wasting and weakening conditions, finding certain kinds of insurance may be harder as insurers may see you as more likely to make a claim. 

A ‘wish’ or ‘dream’ offers children, young people, and adults living with a disability or life-limiting condition the chance to do something extraordinary. Like a special trip or meeting one of your heroes. Some charities in the UK can help make these dreams come true.

Whether you’re in work, or looking for work, here are some schemes to support you to find work or stay in work. We also have have information to help you if you feel you are being discriminated against at work.