Last year, Ollie Clarke, 8, watched his uncle run the London Marathon and told his parents he wanted to do something similar. Fast forward a year and the sporty youngster ran the distance of a marathon (26.2 miles) spread over the month of May and raised £1,000. We spoke to his mum, Emma, who told us why Ollie wanted to fundraise for us.
Dr Ali Kay’s youngest son, Bertie, 14, lives with Ullrich congenital muscular dystrophy. Since his diagnosis a decade ago, the family have raised over £42,000 for us to help fund research into his condition. We caught up with Ali to find out why her latest fundraiser, the South West Coast 50 Ultra Challenge, is special to her.
Many people with muscle wasting conditions have successful, healthy pregnancies. But the chances of you and your baby having problems can vary, depend
You may want to know whether your unborn baby has inherited a muscle wasting condition. For example, if you or the baby’s other parent has a muscle wa
If you have a family history of a muscle wasting condition, you may want to know whether you could pass the condition on to your children. If there’s
The heart can be affected in some muscle wasting conditions. Your doctor or neuromuscular team will tell you if you need heart tests and how often. Th
Many muscle wasting conditions affect the muscles you use to breathe and cough. This can cause a range of symptoms, from very mild to more severe. It’
Can you spare just 90 minutes before kick-off to support children and adults living with muscle wasting conditions? Your time could help us fund life-changing research, support services, and advocacy for families across Scotland.
During the month of July, the ‘Dumbbell Dozen’ led by West Mersea local Colin Morgan, 67, will attempt to lift 1,000 tonnes – the equivalent weight of a fully laden Boeing 747 jumbo jet plus an Airbus A380 super jumbo