The heart can be affected in some muscle wasting conditions. Your doctor or neuromuscular team will tell you if you need heart tests and how often. Th
Statins are medicines that lower your chance of getting some heart and circulation conditions
For the last five years, Maureen Smith, 86, from Nottingham has organised biannual charity lunches in her local community to raise money for us. Inspired by her granddaughter Jade, who lives with FSHD, Maureen has hosted ten lunches and raised £3,200. We spoke to her granddaughter Jade to find out more about her Nanna’s fundraising.
We’ve invested £1 million in a new project led by Professor Mary Reilly at University College London. The goal is to help scientists track changes in Charcot-Marie-Tooth disease (CMT) more clearly. This is an important step towards faster, more effective clinical trials and better care for people living with CMT in the UK.
Professor Mary Reilly is developing a better way to track changes in CMT and collect data from people with CMT. Together, this will transform how clinical trials are run and speed up the search for new treatments.
Last year, Ollie Clarke, 8, watched his uncle run the London Marathon and told his parents he wanted to do something similar. Fast forward a year and the sporty youngster ran the distance of a marathon (26.2 miles) spread over the month of May and raised £1,000. We spoke to his mum, Emma, who told us why Ollie wanted to fundraise for us.
Dr Ali Kay’s youngest son, Bertie, 14, lives with Ullrich congenital muscular dystrophy. Since his diagnosis a decade ago, the family have raised over £42,000 for us to help fund research into his condition. We caught up with Ali to find out why her latest fundraiser, the South West Coast 50 Ultra Challenge, is special to her.
Many people with muscle wasting conditions have successful, healthy pregnancies. But the chances of you and your baby having problems can vary, depend
You may want to know whether your unborn baby has inherited a muscle wasting condition. For example, if you or the baby’s other parent has a muscle wa